A systematic literature review of attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on consent
Background We aimed to synthesise data on issues related to stakeholder perceptions of
consent for the use of secondary data. To better understand the current literature available …
consent for the use of secondary data. To better understand the current literature available …
Physicians' attitudes towards secondary use of clinical data for biomedical research purposes in Germany. Results of a quantitative survey
A Köngeter, C Schickhardt, M Jungkunz, K Mehlis… - Plos one, 2024 - journals.plos.org
Background For biomedical data-driven research purposes, secondary use of clinical data
carries great but largely untapped potential. Physicians' attitudes and their needs towards …
carries great but largely untapped potential. Physicians' attitudes and their needs towards …
Public preference on sharing health data to inform research, health policy and clinical practice in Australia: A stated preference experiment
Objective To investigate public willingness to share sensitive health information for research,
health policy and clinical practice. Methods A total of 1,003 Australian respondents …
health policy and clinical practice. Methods A total of 1,003 Australian respondents …
[HTML][HTML] Practices and attitudes of Bavarian stakeholders regarding the secondary use of health data for research purposes during the COVID-19 pandemic: qualitative …
Background The COVID-19 pandemic is a threat to global health and requires collaborative
health research efforts across organizations and countries to address it. Although routinely …
health research efforts across organizations and countries to address it. Although routinely …
What do Australians affected by cancer think about oncology researchers sharing research data? A cross‐sectional survey
Aim Previous research has shown patients and the public in Australia generally support
medical researchers in making de‐identified research data available to other scientists …
medical researchers in making de‐identified research data available to other scientists …
The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008–2020
M Riley, K Robinson, MF Kilkenny, SG Leggat - Plos one, 2024 - journals.plos.org
Background Using government health datasets for secondary purposes is widespread;
however, little is known on researchers' knowledge and reuse practices within Australia …
however, little is known on researchers' knowledge and reuse practices within Australia …
Data sharing practices in collaborative human genomic research in low-and middle-income countries: A systematic review protocol
D Ekusai-Sebatta, M Ocan, S Singh, D Kyaddondo… - Plos one, 2023 - journals.plos.org
Introduction The practice of creating large databases has become increasingly common by
combining research participants' data into larger repositories. Funders now require that data …
combining research participants' data into larger repositories. Funders now require that data …
Australian general practitioner perceptions to sharing clinical data for secondary use: a mixed method approach
RJ Varhol, S Randall, JH Boyd, S Robinson - BMC Primary Care, 2022 - Springer
Objective The potential for data collected in general practice to be linked and used to
address health system challenges of maintaining quality care, accessibility and safety …
address health system challenges of maintaining quality care, accessibility and safety …
[HTML][HTML] The current status of secondary use of claims, electronic medical records, and electronic health records in epidemiology in Japan: narrative literature review
Y Zhao, T Tsubota - JMIR Medical Informatics, 2023 - medinform.jmir.org
Background Real-world data, such as claims, electronic medical records (EMRs), and
electronic health records (EHRs), are increasingly being used in clinical epidemiology …
electronic health records (EHRs), are increasingly being used in clinical epidemiology …
Consumer attitudes, barriers and facilitators to sharing clinical data for research purposes: Results from a focus group synthesis
RJ Varhol, CMY Lee, S Hindmarsh, JH Boyd… - Heliyon, 2024 - cell.com
Current research into the digital healthcare landscape reveals a significant gap in
understanding the perspectives of consumers with lived health experiences on sharing their …
understanding the perspectives of consumers with lived health experiences on sharing their …