Participants' understanding of informed consent for biobanking: a systematic review

ER Eisenhauer, AR Tait, SY Rieh… - Clinical Nursing …, 2019 - journals.sagepub.com
Nurses are increasingly asked to obtain consent from participants for biobanking studies.
Biobanking has added unique complexities to informed consent. The purpose of this …

Relative responsibilities: is there an obligation to discuss genomics research participation with family members?

P Boddington - Public Health Genomics, 2010 - karger.com
One of the many ethical challenges presented by research in genomics is that, although
informed consent to research has traditionally been a matter for the individual participant …

An Overview of Research Ethics and Challenges from Genomics

P Boddington, P Boddington - … Challenges in Genomics Research: A Guide …, 2012 - Springer
This chapter examines how the traditional basis of research ethics with its foundations in
clinical research may not fit the case of genomics research. In particular, the risk of …