The reported impact of public involvement in biobanks: a scoping review

L Luna Puerta, W Kendall, B Davies, S Day… - Health …, 2020 - Wiley Online Library
Background Biobanks increasingly employ public involvement and engagement strategies,
though few studies have explored their impact. This review aims to (a) investigate how the …

Representing COVID-19 information in collaborative knowledge graphs: the case of Wikidata

H Turki, MA Hadj Taieb, T Shafee, T Lubiana… - Semantic …, 2022 - content.iospress.com
Information related to the COVID-19 pandemic ranges from biological to bibliographic, from
geographical to genetic and beyond. The structure of the raw data is highly complex, so …

Citizen scientists track a charismatic carnivore

MG Connors, H Chen, H Li, A Edmonds… - Journal of Orthoptera …, 2022 - JSTOR
The recent integration of citizen science with modern technology has greatly increased its
applications and has allowed more people than ever to contribute to research across all …

[HTML][HTML] Citizen Science for One Digital Health: A Rapid Qualitative Review of Studies in Air Quality with Reflections on a Conceptual Model

T Kariotis, A Borda, K Winkel… - Citizen …, 2022 - theoryandpractice …
Abstract The concept of One Health, a system-based approach that acknowledges the
interdependence of human, animal, and ecosystem health, has grown in prominence over …

Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome …

T Comans, K Nguyen, L Gray, L Flicker, P Williamson… - BMJ open, 2023 - bmjopen.bmj.com
Introduction The Core Outcome Measures for Improving Care (COM-IC) project aims to
deliver practical recommendations on the selection and implementation of a suite of core …

A pathway to precision medicine for Aboriginal Australians: a study protocol

YY Cheng, J Nunn, J Skinner, B Rambaldini… - Methods and …, 2021 - mdpi.com
(1) Background: Genomic precision medicine (PM) utilises people's genomic data to inform
the delivery of preventive and therapeutic health care. PM has not been well-established for …

Involving people affected by a rare condition in shaping future genomic research

JS Nunn, K Gwynne, S Gray, P Lacaze - Research involvement and …, 2021 - Springer
Background There is evidence that involving potential participants and the public in co-
designing research can improve the quality of the study design, recruitment and …

Co-designing genomics research with a large group of donor-conceived siblings

JS Nunn, M Crawshaw, P Lacaze - Research Involvement and …, 2021 - Springer
Background Human genomics research is growing rapidly. More effective methods are
required for co-design and involving people, especially those sub-populations which are …

“I've never been asked”: Community perspectives on involvement in genomics research

F Russo, I Sherburn, K Finlay, J Nunn, M Ferrie… - 2024 - researchsquare.com
There is increasing global support from governments and other funding bodies for
community involvement (CI) in research, alongside a scientific and moral imperative for …

[HTML][HTML] Why we should be including more people with lived experience in evidence-informed approaches to take action for health and beyond

A English, J Nunn, A Pizarro - 2024 - worldebhcday.com
We are all living through a polycrisis. This word attempts to describe interrelated and
disparate crises that mutually reinforce one another, including the COVID-19 pandemic …