Umbrella review of family‐focused care interventions supporting families where a family member has a long‐term condition
Aim The aim of this study was to summarize reviews of family‐focused care interventions
that support families with a family member with a long‐term condition across the life course …
that support families with a family member with a long‐term condition across the life course …
Children and young people's concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review
Background The use of patient-facing health technologies to manage long-term conditions is
increasing; however, children and young people may have particular concerns or needs …
increasing; however, children and young people may have particular concerns or needs …
Maintenance and development of social connection by people with long-term conditions: A qualitative study
A Wilkinson, L Bowen, E Gustavsson… - International Journal of …, 2019 - mdpi.com
Social connection is important for people's health and well-being. Social isolation arising
from a lack of meaningful connection with others can result in deterioration of well-being with …
from a lack of meaningful connection with others can result in deterioration of well-being with …
Understanding the attitudes and experiences of people living with potentially stigmatised long-term health conditions with respect to collecting and sharing health and …
Background The emerging landscape of patient-generated data (PGData) provides an
opportunity to collect large quantities of information that can be used to develop our …
opportunity to collect large quantities of information that can be used to develop our …
Quantifying the psychological and behavioural consequences of a diagnostic label for non-cancer conditions: systematic review
R Sims, ZA Michaleff, P Glasziou, M Jones… - BJPsych Open, 2023 - cambridge.org
Background Screening for asymptomatic health conditions is perceived as mostly beneficial,
with possible harms receiving little attention. Aims To quantify proximal and longer-term …
with possible harms receiving little attention. Aims To quantify proximal and longer-term …
Self-implant ambiguity? Understanding self-related changes in deep brain stimulation
R Bluhm, LY Cabrera - Philosophical Explorations, 2022 - Taylor & Francis
Deep brain stimulation (DBS) uses electrodes implanted in the brain to modulate
dysregulated brain activity related to a variety of neurological and psychiatric conditions. A …
dysregulated brain activity related to a variety of neurological and psychiatric conditions. A …
Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK
L Ambrosio, K Hislop-Lennie, N Serrano-Fuentes… - BMJ open, 2024 - bmjopen.bmj.com
Objective To present the psychometric properties of the living with long-term condition
(LwLTCs) scale in an English-speaking population of people with different LTCs. Design An …
(LwLTCs) scale in an English-speaking population of people with different LTCs. Design An …
The relationship between illness representations, alexithymia, coping strategies and subjective well-being among persons with asthma
S Shinan-Altman, KO Katzav - Journal of Asthma, 2021 - Taylor & Francis
Background In order to examine subjective well-being (SWB) among persons with asthma,
most of the existing studies have focused on disease-related variables or concentrated on …
most of the existing studies have focused on disease-related variables or concentrated on …
“Who'll do all these if I'm not around?”: Bonding social capital and health and well-being of inpatients
Purpose: Although social capital influences health-related decisions and behavioural
patterns in many developing countries, minimal attention has been paid to the nuances of its …
patterns in many developing countries, minimal attention has been paid to the nuances of its …
Discussion Surrounding Theory, Knowledge, and Practical Applications for Clinical Nurse Specialists to Aid Them in Caring for Parents with Cancer Who Have Young …
AL Ward, L McPherson, E Mc Glanaghy - Seminars in Oncology Nursing, 2023 - Elsevier
Purpose To identify the theory, knowledge, and practical applications that clinical nurse
specialists should consider adding to their “toolkit” to support them in caring for people …
specialists should consider adding to their “toolkit” to support them in caring for people …