Quality of life in amyotrophic lateral sclerosis patients and care burden of caregivers in sardinia during COVID-19 pandemic
D Gentili, G Deiana, V Chessa, A Calabretta, E Marras… - Healthcare, 2023 - mdpi.com
Amyotrophic Lateral Sclerosis (ALS) is a rare neurogenerative disorder whose median
survival ranges from 2 to 4 years after symptomatic onset. Therefore, the global Quality of …
survival ranges from 2 to 4 years after symptomatic onset. Therefore, the global Quality of …
Coping and end-of-life decision-making in ALS: A qualitative interview study
C Spoden, O Wenzel, A Erdmann, G Neitzke… - Plos one, 2024 - journals.plos.org
How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and
engage in end-of-life decision-making? What informational or supportive needs do they …
engage in end-of-life decision-making? What informational or supportive needs do they …
Flexibility to manage and enhance quality of life among people with motor neurone disease
Objectives To identify influential factors for quality of life (QoL) among individuals with motor
neurone disease (MND) and explore how regulatory flexibility and psychological flexibility …
neurone disease (MND) and explore how regulatory flexibility and psychological flexibility …
Wish to die and reasons for living among patients with amyotrophic lateral sclerosis
A Verschueren, G Kianimehr, C Belingher… - … Lateral Sclerosis and …, 2019 - Taylor & Francis
Abstract Objective: In Amyotrophic lateral sclerosis (ALS), disease severity, ineffective
treatment, and increasing dependence on caregivers may give rise to hopelessness and …
treatment, and increasing dependence on caregivers may give rise to hopelessness and …
Unmet supportive care needs mediate the relationship between functional status and quality of life in patients with amyotrophic lateral sclerosis
ObjectiveThe aims of this study were to identify the unmet care needs and to examine the
mediating effect of unmet supportive care needs in the relationship between functional …
mediating effect of unmet supportive care needs in the relationship between functional …
Experiences of acceptance and commitment therapy for people living with motor neuron disease (MND): a qualitative study from the perspective of people living with …
C Rawlinson, RL Gould, CJ McDermott… - The Cognitive …, 2024 - cambridge.org
Background: Motor neuron disease (MND) is a progressive, fatal, neurodegenerative
condition that affects motor neurons in the brain and spinal cord, resulting in loss of the …
condition that affects motor neurons in the brain and spinal cord, resulting in loss of the …
PALS: Patching ALS through crowdsourced advice, social links & public awareness
R Cave, K Kocemba, S Dajic, H Bostock… - Extended Abstracts of the …, 2019 - dl.acm.org
Amyotrophic Lateral Sclerosis (ALS) is a serious and poorly understood disease, impacting
50,000 people a year globally. Our research found that people with ALS express a lack of …
50,000 people a year globally. Our research found that people with ALS express a lack of …
A ticking time bomb: the lived experience of adult individuals diagnosed with amyotrophic lateral sclerosis
SM Cuschieri - 2023 - um.edu.mt
Background: Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease with
involvement of the upper and lower motor neurons in the brain and spinal cord. It is …
involvement of the upper and lower motor neurons in the brain and spinal cord. It is …
[HTML][HTML] Clustering and switching strategies in verbal fluency tasks: comparison between amyotrophic lateral sclerosis (ALS) and healthy controls
Background: Recent studies have demonstrated that ALS patients suffer from cognitive and
language impairments. One of the most striking and consistent cognitive dysfunctions in …
language impairments. One of the most striking and consistent cognitive dysfunctions in …
Penn State Health ALS Center uses research to improve patients' quality of life
Z Simmons - medicalupdate.pennstatehealth.org
Today, the center—the only one of its kind in central Pennsylvania combining
multidisciplinary clinical care and research—follows more than 230 patients. Its research …
multidisciplinary clinical care and research—follows more than 230 patients. Its research …