Developments in managing CF continue to drive dramatic improvements in survival. As
newborn screening rolls-out across Europe, CF centres are increasingly caring for cohorts of …

A significant increase in life expectancy in successive birth cohorts of people with cystic
fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely …

Background: Home is often cited as preferred place of death in the United Kingdom and
elsewhere. This position, however, usually relies on data concerning adults and not …

Objective To characterize patterns of care at the end of life for children and young adults with
life-threatening complex chronic conditions (LT-CCCs) and to compare them by LT-CCC …

Background Enabling death at home remains an important priority in end-of-life care policy.
However, hospital continues to be a more prevalent place of death than home in the UK …

Background: In many countries, achieving a home death represents a successful outcome
from both a patient welfare and commissioning viewpoint. Significant variation exists in the …

The FATHER Model of Loss and Grief After Child’s Life-Limiting Illness Page 1 The FATHER
Model of Loss and Grief After Child’s Life-Limiting Illness Gianina-Ioana Postavaru, PhD …

Background: Studies suggest palliative care may be different in cystic fibrosis (CF) than in
other conditions. To provide quality palliative care to individuals with CF, unique needs must …

Antimicrobial resistance and the adaptation of microbial life to antibiotics are recognised as
a major healthcare challenge. Whereas most social science engagement with antimicrobial …

Elissa G. Miller, MD1, 2, Carly Levy, MD1, 2, Jennifer S. Linebarger, MD3, Jeffrey C. Klick,
MD4, and Brian S. Carter, MD3 Hospice and palliative medicine (HPM) is an emerging …