Legal and ethical challenges of international direct-to-participant genomic research: conclusions and recommendations
Direct-to-participant (DTP) recruitment and enrollment via the internet has proven to be an
effective way of conducting genomic research, especially research on rare diseases …
effective way of conducting genomic research, especially research on rare diseases …
International coordination of research ethics review: an adequacy model
A Thorogood, MJS Beauvais - Philosophies, 2021 - mdpi.com
International direct-to-participant (DTP) genomics research involves the use of mobile
technology to recruit, consent, and study participants remotely. This model can facilitate …
technology to recruit, consent, and study participants remotely. This model can facilitate …
Returning individual research results in international direct-to-participant genomic research: results from a 31-country study
M Lang, MH Zawati - European Journal of Human Genetics, 2022 - nature.com
This paper summarizes the results of a 31-country qualitative study of expert perspectives on
the regulation of international “direct-to-participant”(DTP) genomic research. We outline how …
the regulation of international “direct-to-participant”(DTP) genomic research. We outline how …
Streamlining ethics review for international health research
International biomedical research, in which projects span borders and engage participants
from multiple countries, has increased substantially during the last several decades. Despite …
from multiple countries, has increased substantially during the last several decades. Despite …
[图书][B] Return of Incidental Findings and Individual Results to Participants in the Context of Research Conducted by Direct-to-Consumer Genetic Testing Companies
J Bradbury-Jost - 2022 - search.proquest.com
Direct-to-consumer genetic testing (DTC-GT) companies have created some of the largest
genomic data repositories in the world by storing the genetic and phenotypic information …
genomic data repositories in the world by storing the genetic and phenotypic information …
[PDF][PDF] Overcoming legal obstacles to international direct-to-participant genomic research
MA Rothstein - BioLaw Journal-Rivista di BioDiritto, 2021 - teseo.unitn.it
-4503 genomic research or facilitating the submission of biological specimens and health
information. Some compilations of international research laws and regulations are published …
information. Some compilations of international research laws and regulations are published …