Palliative care in paediatric oncology: an update

N Salins, S Hughes, N Preston - Current oncology reports, 2022 - Springer
Abstract Purpose of this Review The purpose of this review is to describe the evolution of
palliative care in paediatric oncology, the needs of children and their families in a paediatric …

[PDF][PDF] Integrating palliative care and symptom relief into paediatrics: a WHO guide for health-care planners, implementers and managers

World Health Organization - 2018 - apps.who.int
People younger than 20 years comprise 35% of the global population and 40% of the global
population of least-developed nations (1). The number of children–neonates, infants …

Patterns of child death in England and Wales

P Sidebotham, J Fraser, P Fleming, M Ward-Platt… - The Lancet, 2014 - thelancet.com
In the past century, child mortality has fallen to very low rates in all developed countries.
However, rates between and within countries vary widely, and factors can be identified that …

Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study

LM Verberne, MC Kars… - European journal of …, 2019 - Springer
Parenting and providing extensive care to a child with a life-limiting or life-threatening
disease while being aware of the future loss of the child are among the most stressful …

Lived experiences of parents caring for a child with a life-limiting condition in Australia: a qualitative study

A Collins, N Hennessy-Anderson… - Palliative …, 2016 - journals.sagepub.com
Background: Experiential studies in paediatric palliative care are needed to enable an
ongoing international agenda which supports the development of responsive family …

Breaking bad news: what parents would like you to know

MA Brouwer, ELM Maeckelberghe… - Archives of disease in …, 2021 - adc.bmj.com
Objective Breaking bad news about life-threatening and possibly terminal conditions is a
crucial part of paediatric care for children in this situation. Little is known about how the …

Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study

LM Verberne, MC Kars… - European journal of …, 2017 - Springer
In paediatric palliative care (PPC), parents are confronted with increasing caregiving
demands. More children are cared for at home, and the need for PPC of children is …

Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: a cross-sectional study of caregiver-reported …

A Collins, J Burchell, C Remedios… - Palliative …, 2020 - journals.sagepub.com
Background: There is a lack of studies examining the prevalence and severity of
psychosocial distress in parents caring for a child with life-limiting condition. More research …

Paediatric palliative care: development and pilot study of a 'Directory'of life-limiting conditions

R Hain, M Devins, R Hastings, J Noyes - BMC palliative care, 2013 - Springer
Background Children's palliative care services are developing. Rational service
development requires sound epidemiological data that are difficult to obtain owing to …

Living through the death of a child: A qualitative study of bereaved parents' experiences

J Price, J Jordan, L Prior, J Parkes - International journal of nursing studies, 2011 - Elsevier
DESIGN: Cross-sectional qualitative study. DATA SOURCES: Interviews with purposeful
sample of 25 recently bereaved parents. METHODS: Semi-structured in-depth interviews …