Measuring the willingness to share personal health information: a systematic review
M Benevento, G Mandarelli, F Carravetta… - Frontiers in Public …, 2023 - frontiersin.org
Background In the age of digitalization and big data, personal health information is a key
resource for health care and clinical research. This study aimed to analyze the determinants …
resource for health care and clinical research. This study aimed to analyze the determinants …
[HTML][HTML] Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review
Background International advances in information communication, eHealth, and other digital
health technologies have led to significant expansions in the collection and analysis of …
health technologies have led to significant expansions in the collection and analysis of …
Transfer of antibiotics and their metabolites in human milk: Implications for infant health and microbiota
Antibiotics are an essential tool for perinatal care. While antibiotics can play a life‐saving
role for both parents and infants, they also cause collateral damage to the beneficial bacteria …
role for both parents and infants, they also cause collateral damage to the beneficial bacteria …
Peripartum women's perspectives on research study participation in the OneFlorida Clinical Research Consortium during COVID-19 pandemic
Introduction: The COVID-19 pandemic created an unprecedented need for population-level
clinical trials focused on the discovery of life-saving therapies and treatments. However …
clinical trials focused on the discovery of life-saving therapies and treatments. However …
Data professionals' attitudes on data privacy, sharing, and consent in healthcare and research
Objective Individuals who work on health data systems and services are uniquely positioned
to understand the risks of health data collection and use. We designed and conducted a …
to understand the risks of health data collection and use. We designed and conducted a …
Developing a digital informed consent app: opportunities and challenges of a new format to inform and obtain consent in public health research
LV Haring, JT Hall, A Janssen, JM Johannes… - BMC Medical …, 2023 - Springer
Background Informed consent procedures for large population-based cohort studies should
be comprehensive and easy-to-use. This is particularly challenging when participants from …
be comprehensive and easy-to-use. This is particularly challenging when participants from …
Recruitment and retention strategies to promote research engagement among caregivers and their children: A scoping review
TE Corr, A Jusufagic, J Basting, C Caldwell… - Journal of Clinical and …, 2024 - cambridge.org
Long-term health and developmental impact after in utero opioid and other substance
exposures is unclear. There is an urgent need for well-designed, prospective, long-term …
exposures is unclear. There is an urgent need for well-designed, prospective, long-term …