Improving access to eye care: a systematic review of the literature

SD Solomon, RY Shoge, AM Ervin, M Contreras… - Ophthalmology, 2022 - Elsevier
Purpose The goals were to develop a working and inclusive definition of access to eye care,
identify gaps in the current system that preclude access, and highlight recommendations that …

[HTML][HTML] The Impact of Vision Impairment for Children (IVI_C): validation of a vision-specific pediatric quality-of-life questionnaire using Rasch analysis

GM Cochrane, M Marella, JE Keeffe… - … & visual science, 2011 - tvst.arvojournals.org
Purpose.: To validate the Impact of Vision Impairment for Children (the IVI_C), a new vision-
specific pediatric instrument designed to assess the affect of impaired vision on quality of life …

[HTML][HTML] The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

DE McLaughlin, A Semrov, H Munshi, AJ Patel, J Rahi… - Eye, 2023 - nature.com
We present a novel comprehensive literature review of studies of the psychosocial
functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their …

Seeing it my way: living with childhood onset visual disability

V Tadić, GL Hundt, S Keeley, JS Rahi… - Child: care, health …, 2015 - Wiley Online Library
Background Although the significant impact of visual disability in childhood has been widely
recognized, children's own perspectives of living with a visual impairment have not been …

Agreement in quality of life assessment between adolescents with intellectual disability and their parents

Š Golubović, R Škrbić - Research in developmental disabilities, 2013 - Elsevier
Intellectual disability affects different aspects of functioning and quality of life, as well as the
ability to independently assess the quality of life itself. The paper examines the agreement in …

[HTML][HTML] Measuring the quality of life of visually impaired children: first stage psychometric evaluation of the novel VQoL_CYP instrument

V Tadić, A Cooper, P Cumberland, G Lewando-Hundt… - PLoS …, 2016 - journals.plos.org
Purpose To report piloting and initial validation of the VQoL_CYP, a novel age-appropriate
vision-related quality of life (VQoL) instrument for self-reporting by children with visual …

[HTML][HTML] The health-related quality of life of children with hereditary retinal disorders and the psychosocial impact on their families

EL Hamblion, AT Moore, JS Rahi - … ophthalmology & visual …, 2011 - tvst.arvojournals.org
Purpose.: Childhood-onset hereditary retinal disorders comprise a group of visually
disabling conditions with variable onset and progression of visual impairment. Their impact …

Longitudinal study of parents' impact on quality of life of children and young adults with intellectual disabilities

JM Cramm, AP Nieboer - Journal of Applied Research in …, 2012 - Wiley Online Library
Background Earlier research has distinguished five domains of Quality of life (QoL) for
people with ID: material well‐being, development and activity, physical well‐being, social …

Development of the functional vision questionnaire for children and young people with visual impairment: the FVQ_CYP

V Tadić, A Cooper, P Cumberland, G Lewando-Hundt… - Ophthalmology, 2013 - Elsevier
Objective To develop a novel age-appropriate measure of functional vision (FV) for self-
reporting by visually impaired (VI) children and young people. Design Questionnaire …

Epidemiology and world-wide impact of visual impairment in children

JS Rahi, CE Gilbert - Pediatric ophthalmology and strabismus, 2012 - books.google.com
This chapter aims to familiarize the reader with important issues about epidemiological
studies of childhood visual impairment (VI), severe visual impairment (SVI), or blindness …