[HTML][HTML] Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review
Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …
health systems governance, knowledge, and clinical care. Transparency regarding this …
[HTML][HTML] The adoption of artificial intelligence in health care and social services in Australia: findings from a methodologically innovative national survey of values and …
S Isbanner, P O'Shaughnessy, D Steel… - Journal of medical …, 2022 - jmir.org
Background Artificial intelligence (AI) for use in health care and social services is rapidly
developing, but this has significant ethical, legal, and social implications. Theoretical and …
developing, but this has significant ethical, legal, and social implications. Theoretical and …
[HTML][HTML] Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review
Background International advances in information communication, eHealth, and other digital
health technologies have led to significant expansions in the collection and analysis of …
health technologies have led to significant expansions in the collection and analysis of …
[HTML][HTML] In pursuit of socially-minded data-intensive innovation in banking: A focus group study of public expectations of digital innovation in banking
While the field of data ethics is increasingly engaging with the complex socio-technical
nature of data practices and their impacts, in the private sector, data ethics continues to be …
nature of data practices and their impacts, in the private sector, data ethics continues to be …
Public preference on sharing health data to inform research, health policy and clinical practice in Australia: A stated preference experiment
Objective To investigate public willingness to share sensitive health information for research,
health policy and clinical practice. Methods A total of 1,003 Australian respondents …
health policy and clinical practice. Methods A total of 1,003 Australian respondents …
A literature overview on data-driven value and accountability: connecting the private and public dimensions
P Pavone, P Ricci, M Calogero, P Capaccioni - Public Integrity, 2024 - Taylor & Francis
Despite a general awareness of the potential of big data in terms of public interest, several
obstacles prevent their effective sharing. This study, linking the discourse on data to the …
obstacles prevent their effective sharing. This study, linking the discourse on data to the …
Does Legislation Impede Data Sharing in Australia Across Institutions and Jurisdictions? A Scoping Review
J Scheibner, N Kroesche, L Wakefield… - Journal of Medical …, 2023 - Springer
In Australia, regulations governing data, including formal legislation and policies
promulgated by private and public agencies, are often seen as a barrier to data sharing. This …
promulgated by private and public agencies, are often seen as a barrier to data sharing. This …
Sharing precision medicine data with private industry: Outcomes of a citizens' jury in Singapore
Precision medicine is an emerging approach to treatment and disease prevention that relies
on linkages between very large datasets of health information that is shared amongst …
on linkages between very large datasets of health information that is shared amongst …
Conceptualizing fairness in the secondary use of health data for research: A scoping review
P Cervera De La Cruz, M Shabani - Accountability in Research, 2023 - Taylor & Francis
With the introduction of the European Health Data Space (EHDS), the secondary use of
health data for research purposes is attracting more attention. Secondary health data …
health data for research purposes is attracting more attention. Secondary health data …
Community views on the secondary use of general practice data: Findings from a mixed‐methods study
AJ Braunack‐Mayer, C Adams… - Health …, 2024 - Wiley Online Library
Introduction General practice data, particularly when combined with hospital and other
health service data through data linkage, are increasingly being used for quality assurance …
health service data through data linkage, are increasingly being used for quality assurance …