Advocating for neurodata privacy and neurotechnology regulation

R Yuste - Nature Protocols, 2023 - nature.com
The ability to record and alter brain activity by using implantable and nonimplantable neural
devices, while poised to have significant scientific and clinical benefits, also raises complex …

Caregiver burden in Parkinson disease: a critical review of recent literature

PE Mosley, R Moodie… - Journal of geriatric …, 2017 - journals.sagepub.com
Burden is a negative psychological state induced in caregivers by the demands of providing
care to a person with an illness or a disability. Managing caregiver burden in Parkinson …

[HTML][HTML] Towards new human rights in the age of neuroscience and neurotechnology

M Ienca, R Andorno - Life sciences, society and policy, 2017 - Springer
Rapid advancements in human neuroscience and neurotechnology open unprecedented
possibilities for accessing, collecting, sharing and manipulating information from the human …

I miss being me: Phenomenological effects of deep brain stimulation

F Gilbert, E Goddard, JNM Viaña, A Carter… - AJOB …, 2017 - Taylor & Francis
The phenomenological effects of deep brain stimulation (DBS) on the self of the patient
remains poorly understood and under described in the literature, despite growing evidence …

[HTML][HTML] Deflating the “DBS causes personality changes” bubble

F Gilbert, JNM Viaña, C Ineichen - Neuroethics, 2021 - Springer
The idea that deep brain stimulation (DBS) induces changes to personality, identity, agency,
authenticity, autonomy and self (PIAAAS) is so deeply entrenched within neuroethics …

[HTML][HTML] Becoming more oneself? Changes in personality following DBS treatment for psychiatric disorders: Experiences of OCD patients and general considerations

S De Haan, E Rietveld, M Stokhof, D Denys - PloS one, 2017 - journals.plos.org
Does DBS change a patient's personality? This is one of the central questions in the debate
on the ethics of treatment with Deep Brain Stimulation (DBS). At the moment, however, this …

Deep brain stimulation of the subthalamic nucleus in Parkinson's disease: a meta-analysis of mood effects

T Cartmill, D Skvarc, R Bittar, J McGillivray… - Neuropsychology …, 2021 - Springer
This meta-analysis examines mood changes after bilateral subthalamic deep brain
stimulation (STN-DBS) in patients with Parkinson's disease (PD). Deep brain stimulation …

[HTML][HTML] Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial

AR Merner, K Kostick-Quenet, TA Campbell, MT Pham… - Brain stimulation, 2023 - Elsevier
Background There has been substantial controversy in the neuroethics literature regarding
the extent to which deep brain stimulation (DBS) impacts dimensions of personality, mood …

[PDF][PDF] Neuroethics guiding principles for the NIH BRAIN initiative

HT Greely, C Grady, KM Ramos… - The Journal of …, 2018 - Soc Neuroscience
Neuroscience presents important neuroethical considerations. Human neuroscience
demands focused application of the core research ethics guidelines set out in documents …

[HTML][HTML] The site of stimulation moderates neuropsychiatric symptoms after subthalamic deep brain stimulation for Parkinson's disease

PE Mosley, D Smith, T Coyne, P Silburn… - NeuroImage: Clinical, 2018 - Elsevier
Deep brain stimulation of the subthalamic nucleus for Parkinson's disease is an established
advanced therapy that addresses motor symptoms and improves quality of life. However, it …