Treatment non-adherence in pediatric long-term medical conditions: systematic review and synthesis of qualitative studies of caregivers' views

M Santer, N Ring, L Yardley, AWA Geraghty, S Wyke - BMC pediatrics, 2014 - Springer
Background Non-adherence to prescribed treatments is the primary cause of treatment
failure in pediatric long-term conditions. Greater understanding of parents and caregivers' …

Children's perspectives on living with a sibling with a chronic illness

A Deavin, P Greasley, C Dixon - Pediatrics, 2018 - publications.aap.org
OBJECTIVE: The meta-synthesis was used to explore the experiences of siblings of children
with PCIs to understand their perspectives; in particular, we observed what they feel had …

Parental distress during pediatric leukemia and posttraumatic stress symptoms (PTSS) after treatment ends

M Best, R Streisand, L Catania… - Journal of pediatric …, 2001 - academic.oup.com
Objective: To evaluate prospectively the association between parental anxiety during
treatment for childhood leukemia and posttraumatic stress symptoms (PTSS) after treatment …

Adherence to treatment in adolescents with cystic fibrosis: the role of illness perceptions and treatment beliefs

RS Bucks, K Hawkins, TC Skinner… - Journal of pediatric …, 2009 - academic.oup.com
Objectives This study was conducted to explore the relationships between illness
perceptions, emotional representations, treatment beliefs and reported adherence in …

Children's experiences of cystic fibrosis: a systematic review of qualitative studies

N Jamieson, D Fitzgerald, D Singh-Grewal… - …, 2014 - publications.aap.org
BACKGROUND AND OBJECTIVE: Cystic fibrosis (CF) is a common life-shortening genetic
disease and is associated with poor psychosocial and quality of life outcomes. The objective …

[HTML][HTML] Treatment compliance in children and adults with cystic fibrosis

RPA Llorente, CB García, JJD Martín - Journal of Cystic Fibrosis, 2008 - Elsevier
OBJECTIVES: To determine treatment compliance and how compliance was perceived by
patients, parents and by a multidisciplinary team in Cystic Fibrosis (CF) patients. Also to …

Adolescents' experiences of well‐being when living with a long‐term illness or disability

L Berntsson, M Berg, M Brydolf… - … Journal of Caring …, 2007 - Wiley Online Library
Present‐day society has produced changes in family living patterns and conditions and this
has resulted in new stressors and health problems. Most children and adolescents with …

Socioeconomic status and health outcomes: cystic fibrosis as a model

GR Oates, MS Schechter - Expert review of respiratory medicine, 2016 - Taylor & Francis
ABSTRACT Introduction: Socioeconomic status (SES), which indicates one's access to
financial, educational, and social resources, is a powerful determinant of health outcomes in …

Well siblings of children with chronic illness: a synthesis research study

N Havill, LK Fleming, K Knafl - Research in nursing & health, 2019 - Wiley Online Library
Well siblings of chronically ill children experience family disruptions that profoundly affect
them. Previous research focusing on well siblings' experiences has often produced …

Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A

M García‐Dasí, JA Aznar, V Jiménez‐Yuste… - …, 2015 - Wiley Online Library
Treatment adherence in adolescents with chronic diseases is around 50%, and failure is
more common in preventive therapy. In haemophilia, contradictory results are reported by …