Background. Birth defects remain a significant source of worldwide morbidity and mortality.
Strong scientific evidence shows that folic acid fortification of a region's food supply leads to …

OBJECTIVE: Urinary tract infections (UTIs) are a common source of morbidity among
children with spina bifida (SB) and are a frequently reported outcome in studies of this …

Objective To use data from the US National Spina Bifida Patient Registry (NSBPR) to
describe variations in Contexts of Care, Processes of Care, and Health Outcomes among …

Study design: Cross-sectional survey. Objectives: To examine factors that may enhance and
promote resilience in adults with spina bifida. Setting: Community-based disability …

OBJECTIVE: To evaluate trends in survival among children with spina bifida by
race/ethnicity and possible prognostic factors in 10 regions of the United States. STUDY …

Purpose: Anecdotal evidence suggests that complex congenital genitourinary anomalies are
occurring less frequently. However, few epidemiological studies are available to confirm or …

Context Patients born with complex congenital genitourinary anomalies (including bladder
exstrophy, cloacal exstrophy, epispadias, neurogenic bladder, hypospadias and posterior …

Objective This study was designed to examine whether executive functions and parenting
behaviors (acceptance, behavioral control, and psychological control) are associated with …

PURPOSE: To describe the development and implementation of the Children's of Alabama
(COA) Spina Bifida (SB) Lifetime-Care-Model, including standardized care protocols and …

Congenital heart defects (CHDs) are the most common type of birth defect, affecting 1% of
births per year. 1 Although survival has been improving over time, there remain numerous …