X-linked retinitis pigmentosa (XLRP) is a severe form of retinitis pigmentosa (RP), a rare,
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …

Background Retinitis pigmentosa (RP) are a group of incurable and inherited eye
conditions, and the leading cause of inherited blindness in people under the age of 60. The …

Purpose Retinitis pigmentosa (RP) is the most common retinal degeneration causing
blindness. Although their clinical problems are amenable for the clinical diagnosis, their day …

Background Existing patient-reported outcome (PRO) measures may not be relevant to the
full range of functional and vision-related quality of life (VR-QOL) concerns of individuals …

BACKGROUND: Despite the importance of the (long) cane as a mobility device, there are
few reports of blind and partially sighted people's experiences of using it. Due to the …

Background The lack of an appropriate retina-specific patient-reported outcome instrument
restricts the understanding of the full impact of hereditary retinal diseases and other less …

Blind Canadians experience higher rates of unemployment, social isolation, and poverty
than sighted Canadians. Examining what influences opportunities can help to identify the …

Background Retinitis pigmentosa (RP) is a genetically heterogeneous retinal dystrophy
which results in progressive vision loss. There is scant literature on the experiences of …

ABSTRACT PURPOSE: This exploratory qualitative research was conducted to understand
the quality of life (QoL) impacts of adult uveitis to develop a uveitis QoL item bank, and we …

Western society associates knowledge with vision while affiliating blindness with ignorance.
Following critical disability studies and drawing upon non-structured interview data and …