[HTML][HTML] Incidental findings of uncertain significance: To know or not to know-that is not the question

B Hofmann - BMC Medical Ethics, 2016 - Springer
Background Although the “right not to know” is well established in international regulations,
it has been heavily debated. Ubiquitous results from extended exome and genome analysis …

Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice

D Pullman, K Hodgkinson - Clinical genetics, 2006 - Wiley Online Library
Despite a rapidly expanding literature on the issue of duty to warn at‐risk relatives in the
context of clinical genetic testing, little has been written on parallel issues with regard to the …

To know or not to know: should crimes regarding photographs of their child sexual abuse be disclosed to now-adult, unknowing victims?

S Ost, AA Gillespie - International review of victimology, 2019 - journals.sagepub.com
This paper considers the unexplored question of whether unaware crime victims have rights
or interests in knowing and not knowing information pertaining to the crime (s) committed …

Predictive genetic testing, autonomy and responsibility for future health

E Hildt - Medicine Studies, 2009 - Springer
Individual autonomy is a concept highly appreciated in modern Western societies. Its
significance is reflected by the central importance and broad use of the model of informed …

HIV and the right not to know

J Youngs, J Simmonds - Journal of medical ethics, 2016 - jme.bmj.com
It is a tenet of the prevailing ethic in medicine that competent adults have the 'right to
know'information necessary to make informed decisions about their healthcare. Whether …

Limited Relevance of the Right Not to Know—Reflections on a Screening Study

G Helgesson, S Eriksson, U Swartling - Accountability in Research, 2007 - Taylor & Francis
The right not to know personal health-related information has been included in prominent
human rights documents and subsequently in national legislation since the middle of the …

[PDF][PDF] O direito de não saber e os limites do dano indenizável The right not to know and the limits of indemnifiable damages

FN Barbosa - academia.edu
o presente artigo visa analisar os principais argumentos suscitados a respeito do chamado
direito de não saber (right not to know) no que tange a dados sensíveis, especialmente …

'유전정보를모를권리'의윤리적· 법적근거와실현방법

유호종 - 한국의료법학회지제, 2014 - papersearch.net
[국문초록] 앎은 전통적으로 좋은 것으로 간주되어 왔다. 그러나 자기 유전정보에 대한 앎은
불안감이나 초조함 같은 피해만을 줄 수 있다. 그래서 독일법 등에서는 이 유전정보를 모를 …

The clinical and genetic epidemiology of arrhythmogenic right ventricular cardiomyopathy in Newfoundland

KA Hodgkinson - 2009 - research.library.mun.ca
Background--Arrhythmogenic right ventricular cardiomyopathy (ARVC) is a cause of sudden
cardiac death (SCD) in young people due to ventricular tachyarrhythmias. One autosomal …

The ethics of non-consensual HIV testing are not substantively different from the ethics of overriding the right not to know a test result

C Foster - Journal of medical ethics, 2016 - jme.bmj.com
The authors' deference for Claim A ('there is a very strong presumption that it is morally
wrong to override a competent adult's refusal of an HIV test') is unsustainable. It is at odds …