Future planning among families of individuals with intellectual and developmental disabilities: A systematic review

C Lee, MM Burke - Journal of Policy and Practice in Intellectual …, 2020 - Wiley Online Library
Considering individuals with intellectual and developmental disabilities (IDD) are having
longer lives and outliving their parents, future planning has emerged as one of the most …

Caregiving roles of siblings of adults with intellectual and developmental disabilities: A systematic review

C Lee, MM Burke - Journal of Policy and Practice in Intellectual …, 2018 - Wiley Online Library
As individuals with intellectual and developmental disabilities (I/DD) grow older, many
siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However …

“What's going to happen when we're gone?” Family caregiving capacity for older people with an intellectual disability in Ireland

D Brennan, R Murphy, P McCallion… - Journal of Applied …, 2018 - Wiley Online Library
Background Changing family sociodemographic factors, increased life expectancy for
people with an intellectual disability, deinstitutionalization and policy prioritization of the …

The support needs of families raising children with intellectual disability

MJ Modula - African Journal of Disability, 2022 - journals.co.za
Background The deinstitutionalisation of children suffering from intellectual disability (ID) is a
global phenomenon. Most families raising such children experience a range of difficulties …

Real change or more of the same? Analysing Australian media's portrayal of intellectual disability during the NDIS rollout

S Winterbotham, BG Knight… - Journal of Applied …, 2023 - Wiley Online Library
Background Through the filtering of information, the creation, and reinforcement of
stereotypes, media moulds attitudes and set agendas on critical social issues including …

Anxiety and depression symptomatology in adult siblings of individuals with different developmental disability diagnoses

LP O'Neill, LE Murray - Research in developmental disabilities, 2016 - Elsevier
Factors predicting the emotional well-being of adult siblings of those with developmental
disability (DD) remain under-researched. In this study adult siblings of individuals with …

Adult siblings who have a brother or sister with autism: Between-family and within-family variations in sibling relationships

GI Orsmond, D Fulford - Journal of autism and developmental disorders, 2018 - Springer
Prior research on the sibling relationship in the context of autism spectrum disorder (ASD)
has included only one sibling per family. We used multi-level modeling to examine aspects …

Adult siblings consider the future: Emergent themes

D Davys, D Mitchell, C Haigh - Journal of Applied Research in …, 2016 - Wiley Online Library
Background This study aimed to explore the perceptions of adult siblings regarding a future
care role and compare with perceived parental wishes as family often provide a key support …

Siblings of adults with intellectual disabilities in Chinese societies: A scoping review

K Xun, C Bigby, T Araten-Bergman - Journal of Intellectual & …, 2024 - Taylor & Francis
Adult siblings without disabilities play important roles in relation to their brothers and sisters
with intellectual disabilities. This study reviewed knowledge about adult sibling relationships …

'There's a timebomb': Planning for parental death and transitions in care for older people with intellectual disabilities and their families

RJ Anderson‐Kittow, R Keagan‐Bull… - Journal of Applied …, 2024 - Wiley Online Library
Background Increasing numbers of older adults with intellectual disabilities are living with
ageing parents. These families need support to plan for the future to avoid crisis …