[HTML][HTML] Mapping of crowdsourcing in health: systematic review
P Créquit, G Mansouri, M Benchoufi, A Vivot… - Journal of medical …, 2018 - jmir.org
Background Crowdsourcing involves obtaining ideas, needed services, or content by
soliciting Web-based contributions from a crowd. The 4 types of crowdsourced tasks …
soliciting Web-based contributions from a crowd. The 4 types of crowdsourced tasks …
The role of race and ethnicity in views toward and participation in genetic studies and precision medicine research in the United States: a systematic review of …
Background Racial/ethnic minority populations in the United States are consistently
underrepresented in genetic research. Large‐scale public participation is required to ensure …
underrepresented in genetic research. Large‐scale public participation is required to ensure …
Beyond consent: building trusting relationships with diverse populations in precision medicine research
With the growth of precision medicine research on health data and biospecimens, research
institutions will need to build and maintain long-term, trusting relationships with patient …
institutions will need to build and maintain long-term, trusting relationships with patient …
[HTML][HTML] A review of African Americans' beliefs and attitudes about genomic studies: opportunities for message design
Precision Medicine, the practice of targeting prevention and therapies according to an
individual's lifestyle, environment or genetics, holds promise to improve population health …
individual's lifestyle, environment or genetics, holds promise to improve population health …
Public attitudes toward genetic risk scoring in medicine and beyond
Advances in genomics research have led to the development of polygenic risk scores, which
numerically summarize genetic predispositions for a wide array of human outcomes. Initially …
numerically summarize genetic predispositions for a wide array of human outcomes. Initially …
[HTML][HTML] Factors influencing precision medicine knowledge and attitudes
R Chakravarthy, SC Stallings, M Williams, M Hollister… - PLoS …, 2020 - journals.plos.org
Precision medicine holds great promise for improving health and reducing health disparities
that can be most fully realized by advancing diversity and inclusion in research participants …
that can be most fully realized by advancing diversity and inclusion in research participants …
[HTML][HTML] Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete-choice experiment
Purpose Application of whole-exome and whole-genome sequencing is likely to increase in
clinical practice, public health contexts, and research. We investigated how parental …
clinical practice, public health contexts, and research. We investigated how parental …
Racial representation disparity of population-level genomic sequencing efforts
To develop personalized treatments for diseases, it is essential that they reflect the
population of individuals that may be affected by a given disease. Amidst claims that there …
population of individuals that may be affected by a given disease. Amidst claims that there …
Genes, race, and causation: US public perspectives about racial difference
Concerns have been raised that the increase in popular interest in genetics may herald a
new era within which racial inequities are seen as “natural” or immutable. In the following …
new era within which racial inequities are seen as “natural” or immutable. In the following …
[HTML][HTML] Patient preferences for massively parallel sequencing genetic testing of colorectal cancer risk: a discrete choice experiment
This study enumerated patients' preference-based personal utility and willingness-to-pay for
massively parallel sequencing (MPS) genetic testing of colorectal cancer (CRC) risk. Our …
massively parallel sequencing (MPS) genetic testing of colorectal cancer (CRC) risk. Our …