A systematic review on factors and consequences of parental distress as related to childhood cancer

S Sultan, T Leclair, E Rondeau… - European journal of …, 2016 - Wiley Online Library
The literature including correlates of parental distress as related to childhood cancer is
abundant. It is important to identify predictive factors and outcomes of this distress in parents …

The physical health of caregivers of children with life-limiting conditions: a systematic review

J Hartley, M Bluebond-Langner, B Candy… - …, 2021 - publications.aap.org
The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic
Review | Pediatrics | American Academy of Pediatrics Skip to Main Content Disclaimer » …

The needs of parents of children suffering from cancer—continuation of research

A Lewandowska - Children, 2022 - mdpi.com
Background: Parents experience many healthcare needs when caring for their sick children.
Research shows that parents of oncological children have a high level of unmet needs …

Care burden and associated factors in caregivers of children with cancer

M Chaghazardi, M Janatolmakan, S Rezaeian… - Italian Journal of …, 2022 - Springer
Background Evidence suggests that many parents who care for their children with cancer
are affected by the care burden due to the chronic nature of the disease. The aim of this …

Providing care to a child with cancer: a longitudinal study on the course, predictors, and impact of caregiving stress during the first year after diagnosis

E Sulkers, WJE Tissing, A Brinksma… - Psycho …, 2015 - Wiley Online Library
Objective This study investigated the course, predictors, and impact of caregiving stress on
the functioning of primary caregivers of children with cancer during the first year after a …

Health-related quality of life and perceived burden of informal caregivers of patients with rare diseases in selected European countries

C Valcárcel-Nazco, Y Ramallo-Fariña… - International Journal of …, 2022 - mdpi.com
Most of rare disease (RD) patients are assisted in their homes by their family as informal
caregivers, causing a substantial burden among family members devoted to care. The role …

Parents' perceptions about their child's illness in pediatric cancer: Links with caregiving burden and quality of life

Á Salvador, C Crespo, AR Martins, S Santos… - Journal of child and …, 2015 - Springer
This study examined the direct and indirect links, via the caregiving burden, between
parents' perceptions about the severity of their child's illness and its interference in his or her …

Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia

CA Feeley, A Turner-Henson, BJ Christian… - Journal of pediatric …, 2014 - Elsevier
Little is known about the influence of sleep quality, stress, and caregiver burden on quality of
life in maternal caregivers of young children with bronchopulmonary dysplasia (BPD). In 61 …

Profiles of social and coping resources in families of children with autism spectrum disorder: Relations to parent and child outcomes

A Zaidman-Zait, P Mirenda, P Szatmari, E Duku… - Journal of autism and …, 2018 - Springer
This study described empirically derived profiles of parents' personal and social coping
resources in a sample of 207 families of children diagnosed with autism spectrum disorder …

[PDF][PDF] Variables que predicen la aparición de sobrecarga en cuidadores primarios informales de niños con cáncer

XM Pardo, SJ Cárdenas, JM Venegas - Psicooncología, 2015 - core.ac.uk
El propósito del estudio fue identificar las variables psicológicas y las características del
cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de …