Purpose Social media may be particularly valuable in research in rare genetic diseases
because of the low numbers of patients and the rare disease community's robust online …

Stakeholder engagement is acknowledged as central to dissemination and implementation
(D&I) of research that generates and answers new clinical and health service research …

Abstract Background and Objective People living with asthma, their carers, clinicians and
policymakers are the end‐users of research and need research that address their individual …

Background The need to include individuals with lived experience (ie, patients, family
members, caregivers, researchers, and clinicians) in health research priority setting is …

Objectives To identify research priorities for hypertensive disorders of pregnancy from
individuals with lived experience and healthcare professionals. Design Prospective surveys …

Background A scoping review found that most studies on women's health in multiple
sclerosis (MS) focused on pregnancy, fetal/neonatal outcomes and sexual dysfunction. Few …

Introduction People with pulmonary fibrosis (PF) experience a high symptom burden,
reduced quality of life and a shortened lifespan. Treatment options are limited and little is …

Background Prioritisation of clinical trials ensures that the research conducted meets the
needs of stakeholders, makes the best use of resources and avoids duplication. The aim of …

Cystic fibrosis (CF) is now more common in adults than children in countries with well-
developed health care systems. The number of adults continues to increase and will further …

Health disparities in incarcerated populations should guide investment in the health care
and research of these communities. Although users of health-care services are important in …