Children and young people's concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

S Blower, V Swallow, C Maturana, S Stones… - Archives of disease in …, 2020 - adc.bmj.com
Background The use of patient-facing health technologies to manage long-term conditions is
increasing; however, children and young people may have particular concerns or needs …

Welcoming new life under lockdown: Exploring the experiences of first‐time mothers who gave birth during the COVID‐19 pandemic

A Gray, J Barnett - British Journal of Health Psychology, 2022 - Wiley Online Library
Objectives This study aimed to explore how first‐time mothers in the UK experienced new
parenthood during the coronavirus (COVID‐19) pandemic. Design This study used a cross …

The lonely, isolating, and alienating implications of myalgic encephalomyelitis/chronic fatigue syndrome

S Boulazreg, A Rokach - Healthcare, 2020 - mdpi.com
This article provides a narrative review on myalgic encephalomyelitis/chronic fatigue
syndrome (ME/CFS) through a psychosocial lens and examines how this impairment affects …

Experiences of higher education for students with chronic illnesses

PR Hamilton, JA Hulme, ED Harrison - Disability & society, 2023 - Taylor & Francis
This paper explores the experiences of students with chronic illnesses in UK universities.
Sixty-seven students with chronic illnesses completed an online survey with open-ended …

Good Days, Bad Days: Understanding the Trajectories of Technology Use During Chronic Fatigue Syndrome

L Paymal, S Homewood - Proceedings of the CHI Conference on Human …, 2024 - dl.acm.org
People with chronic illness often fluctuate between “good days” and “bad days” where
symptoms are more or less severe depending on a range of factors and triggers. Our …

Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment

F Moncorps, E Jouet, S Bayen… - Health & Social Care …, 2022 - Wiley Online Library
The COVID‐19 pandemic has focused health systems on supporting patients affected by this
virus. Meanwhile in the community, many other contained patients could only use self‐care …

[HTML][HTML] Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital …

E Dorronzoro-Zubiete, J Castro-Marrero… - JMIR Research …, 2024 - researchprotocols.org
Background Fatigue is the most common symptom in myalgic encephalomyelitis/chronic
fatigue syndrome (ME/CFS) and long COVID, impacting patients' quality of life; however …

Adults with ME/CFS report surprisingly high rates of youth symptoms: A qualitative analysis of patient blog commentary

M Johnson, C Torres, H Watts-Rich, L Jason - Work, 2023 - content.iospress.com
BACKGROUND: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a
debilitating chronic illness that impacts pediatric populations. OBJECTIVE: The current study …

Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study

WA Similä, TH Nøst, IB Helland, TB Rø - BMJ open, 2021 - bmjopen.bmj.com
Objectives To explore factors perceived as positive or negative among young people with
chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in relation to school and …

Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?

A Gregorowski, J Simpson… - Current Opinion in …, 2019 - journals.lww.com
Child and adolescent chronic fatigue syndrome/myalgic enceph... : Current Opinion in Pediatrics
Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now …