Background Billions of dollars are lost annually in health research that fails to create
meaningful benefits for patients. Engaging in research co-design–the meaningful …

Background Conducting research in partnership with stakeholders (eg policy-makers,
practitioners, organisations, patients) is a promising and popular approach to improving the …

Background Equal access to mainstream healthcare services for people with intellectual
disabilities (ID) still requires attention. Although recent studies suggest that health …

Background To investigate and address the evidence gap on the effectiveness of co-
creation/production in international health research. Methods An initial systematic search of …

Background Within the context of the Special Interest Research Group (SIRG) on Persons
with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the …

Background Co-design with consumers and healthcare professionals is widely used in
applied health research. While this approach appears to be ethically the right thing to do, a …

People with intellectual disability (ID) are increasingly involved in stakeholder-engaged
research, such as “inclusive research”(IR). To understand the processes that foster and …

Abstract The recent National Institute of Health (NIH) INCLUDE (INvestigation of Co-
occurring conditions across the Lifespan to Understand Down syndromE) initiative has …

Participatory action research methodologies may empower and protect marginalized
individuals; however, they remain underutilized. Limited studies have investigated the …

With inclusive research being an emerging field of interest, there is growing recognition that
establishing collaborative relationships between researchers with and without ID entails …