[HTML][HTML] Using blockchain and semantic web technologies for the implementation of smart contracts between individuals and health insurance organizations

E Chondrogiannis, V Andronikou… - Blockchain: Research …, 2022 - Elsevier
Blockchains and smart contracts are gaining momentum as enabling technologies for a wide
set of applications where data distribution and sharing among decentralized infrastructures …

Ethical considerations in research with people from refugee and asylum seeker backgrounds: A systematic review of national and international ethics guidelines

N Davidson, K Hammarberg, J Fisher - Journal of Bioethical Inquiry, 2024 - Springer
Refugees and asylum seekers may experience challenges related to pre-arrival
experiences, structural disadvantage after migration and during resettlement requiring the …

Adverse events: race, inequality, and the testing of new pharmaceuticals

JA Fisher - Adverse Events, 2020 - degruyter.com
Imagine that you volunteer for the clinical trial of an experimental drug. The only direct
benefit of participating is that you will receive up to $5,175. You must spend twenty nights …

The ethical anatomy of payment for research participants

J Różyńska - Medicine, Health Care and Philosophy, 2022 - Springer
In contrast to most publications on the ethics of paying research subjects, which start by
identifying and analyzing major ethical concerns raised by the practice (in particular, risks of …

Healthy volunteers in US phase I clinical trials: sociodemographic characteristics and participation over time

CA Kalbaugh, JM Kalbaugh, L McManus, JA Fisher - PLoS One, 2021 - journals.plos.org
Background Increasing the diversity of research participants is an important focus of clinical
trials. However, little is known regarding who enrolls as healthy volunteers in Phase I clinical …

Ethical considerations around volunteer payments in a malaria human infection study in Kenya: an embedded empirical ethics study

PC Chi, EA Owino, I Jao, P Bejon, M Kapulu… - BMC Medical …, 2022 - Springer
Abstract Human Infection Studies (HIS) have emerged as an important research approach
with the potential to fast track the global development of vaccines and treatments for …

Understanding the benefits and burdens associated with a malaria human infection study in Kenya: experiences of study volunteers and other stakeholders

PC Chi, EA Owino, I Jao, F Olewe, B Ogutu, P Bejon… - Trials, 2021 - Springer
Background Human infection studies (HIS) that involve deliberately infecting healthy
volunteers with a pathogen raise important ethical issues, including the need to ensure that …

Perception of clinical research among patients and healthy volunteers of clinical trials

F Bergmann, P Matzneller, M Weber… - European Journal of …, 2022 - Springer
Purpose Clinical research relies on data from patients and volunteers, yet the target sample
size is often not achieved. Here, we assessed the perception of clinical research among …

Ethical criteria for improved human subject protections in phase I healthy volunteer trials

RL Walker, D MacKay, M Waltz… - Ethics & human …, 2022 - Wiley Online Library
Phase I healthy volunteer trials test the safety and tolerability of investigational
pharmaceuticals. In them, participants are exposed to study‐drug risks without the possibility …

“Death and Taxes”: Why Financial Compensation for Research Participants is an Economic and Legal Risk

M Waltz, AM Davis, JA Fisher - Journal of Law, Medicine & Ethics, 2023 - cambridge.org
In the US, research payments are technically taxable income. This article argues that tax
liability is a form of possible economic and legal risk of paid research participation. Findings …