Background: Advance care planning aims to ensure that care received during serious and
chronic illness is consistent with the person's values, preferences and goals. However, less …

Death with dementia is increasingly common. Although prognostication is difficult, it is an
incurable life-limiting illness for which palliative care for the patient is often appropriate …

Aim. To review systematically research conducted during the past five years focusing on the
relatives' situation and needs in end‐of‐life care. Background and aim. That relatives make …

Background: Planning ahead may be particularly relevant in dementia considering patients'
cognitive decline and difficulty to predict the course of the dementia. Objective: To identify …

Caring for a terminally ill loved one and the death of that person are two of the most stressful
human experiences. Recent research suggests that a substantial number of caregivers are …

Social workers from clinical, academic, and research settings met in 2002 for a national
Social Work Leadership Summit on Palliative and End-of-Life Care. Participants placed the …

Background: Patients with dementia often receive poor end-of-life care, with inadequate
pain control and without access to the palliative care services that patients with cancer are …

Advance directives emerged in the 1960s with the goal of empowering people to exert
control over their future medical decisions. However, it has become apparent, over recent …

Makingend-of-lifecare decisions in the context of dementiais complex. As people with
advanced dementia are in capable of deciding about their own care, family caregivers often …

OBJECTIVES: To describe the medical decisions confronting healthcare proxies (HCPs) of
nursing home (NH) residents with advanced dementia and to identify factors associated with …