Health literacy and heart failure: a systematic review

MI Cajita, TR Cajita, HR Han - Journal of Cardiovascular Nursing, 2016 - journals.lww.com
Background: Low health literacy affects millions of Americans, putting those who are affected
at a disadvantage and at risk for poorer health outcomes. Low health literacy can act as a …

Simplifying informed consent as a universal precaution

IZ Feinberg, A Gajra, L Hetherington, KS McCarthy - Scientific Reports, 2024 - nature.com
One barrier to participating in clinical research is that patients with low literacy skills (1 in 5
US adults) may struggle to understand the informed consent document (ICD). Writing …

Readability of patient information and consent documents in rheumatological studies

B Hamnes, Y van Eijk-Hustings, J Primdahl - BMC Medical Ethics, 2016 - Springer
Background Before participation in medical research an informed consent must be obtained.
This study investigates whether the readability of patient information and consent documents …

Navigating the institutional review board (IRB) process for pharmacy-related research

MS Phillips, O Abdelghany, S Johnston… - Hospital …, 2017 - journals.sagepub.com
Pharmacists' specialized training and knowledge qualify them to lead and engage in
research pertaining to optimal medication use. Performing research promotes pharmacy …

“Ultimately, mom has the call”: Viewing clinical trial decision making among patients with ovarian cancer through the lens of relational autonomy

GB Asiedu, JL Ridgeway, K Carroll, A Jatoi… - Health …, 2018 - Wiley Online Library
Objective This study employs the concept of relational autonomy to understand how
relational encounters with family members (FM s) and care providers may shape decisions …

What advanced cancer patients with limited treatment options know about clinical research: a qualitative study

SB Garrett, CJ Koenig, L Trupin, FJ Hlubocky… - Supportive Care in …, 2017 - Springer
Purpose Discussions between oncologists and advanced cancer patients (ACPs) may touch
on the complex issue of clinical trial participation. Numerous initiatives have sought to …

A cross-sectional audit of informed consent of online survey: Characteristics and adherence to prevalent guidelines

H Mondal, S Mondal, S Soni - Perspectives in Clinical Research, 2023 - journals.lww.com
Background: Research on human participants requires formal approval from a competent
ethics committee. During the recruitment of the research participants, obtaining informed …

Advanced cancer patients' understanding and perceptions of phase I clinical trials

J Pawlowski, L Malik, D Mahalingam - Cancer Investigation, 2015 - Taylor & Francis
This questionnaire-based study assessed the understanding and perceptions of cancer
patients who were participating in a Phase I clinical trial at baseline and determined any …

[图书][B] Exploring visual prevention: Developing infographics as effective Cervical Cancer prevention for African American women

CP Parrish - 2016 - search.proquest.com
The purpose of this dissertation is to explore the creation of a cervical cancer health
prevention infographic, geared toward African American women ages 30 to 65, to be …

[PDF][PDF] Targeted informed consent: empowering young participants in medical-scientific research

P Grootens-Wiegers - Leiden …, 2016 - scholarlypublications …
Baker, JN, Leek, AC, Salas, HS, Drotar, D., Noll, R., Rheingold, SR, & Kodish, ED (2013).
Suggestions from adolescents, young adults, and parents for improving informed consent in …