Executive summary The past six decades have seen remarkable improvements in health
outcomes for people with cystic fibrosis, which was once a fatal disease of infants and young …

Developments in managing CF continue to drive dramatic improvements in survival. As
newborn screening rolls-out across Europe, CF centres are increasingly caring for cohorts of …

Background Advanced cystic fibrosis lung disease (ACFLD) is common, is associated with
reduced quality of life, and remains the most frequent cause of death in individuals with …

Objective Provide recommendations to the cystic fibrosis (CF) community to facilitate timely
referral for lung transplantation for individuals with CF. Methods The CF Foundation …

Background: In 2011, the median age of survival of patients with cystic fibrosis reported in
the United States was 36.8 years, compared with 48.5 years in Canada. Direct comparison …

METHODS: Protocol and registration This review was prospectively registered in the
Prospero International Prospective Register of Systematic Reviews (2018 ID …

Socioeconomic status (SES) is defined as an individual's social or economic standing, and
is a measure of an individual's or family's social or economic position or rank in a social …

Cystic fibrosis transmembrane conductance regulator modulators have revolutionized cystic
fibrosis (CF) care in the past decade. This study explores the CF-related mortality trends in …

Background Due to the COVID-19 pandemic, there was an uptake of telehealth in cystic
fibrosis care. Previous studies show disparities in telehealth use based on socioeconomic …

Understanding variability in cystic fibrosis (CF) health outcomes requires an understanding
of factors that go far beyond Cystic Fibrosis Transmembrane Receptor (CFTR) function …