Just in time: Challenges and opportunities of first aid care information sharing for supporting epileptic seizure response

A Min, W Miller, L Rocha, K Börner… - Proceedings of the …, 2021 - dl.acm.org
There are over three million people living with epilepsy in the US People with epilepsy
experience multiple daily challenges such as seizures, social isolation, social stigma …

[HTML][HTML] The role of online social networks in improving health literacy and medication adherence among people living with HIV/AIDS in Iran: Development of a …

A Bazrafshani, S Panahi, H Sharifi, E Merghati-Khoei - Plos one, 2022 - journals.plos.org
Online social networks have been used to enhance human immunodeficiency virus (HIV)
and acquired immunodeficiency syndrome (AIDS) prevention, diagnosis, and treatment …

[HTML][HTML] Community-engaged participatory methods to address lesbian, gay, bisexual, transgender, queer, and questioning young people's health information needs …

D Delmonaco, S Li, C Paneda, E Popoff… - JMIR Formative …, 2023 - formative.jmir.org
Background Lesbian, gay, bisexual, transgender, queer, and questioning (LGBTQ+) young
people (aged 15 to 25 years) face unique health challenges and often lack resources to …

The narrative tapestry design process: Weaving online social support from stories of stigma

J Introne, I Munoz, B Semaan - Proceedings of the ACM on Human …, 2021 - dl.acm.org
While many technology-based approaches to support people living with HIV target specific
clinical goals, recent work has begun to consider how to design support in the context of HIV …

Exploring the Role of Shame in Design Strategies

J Trondsen, C Boks - Proceedings of the Design Society, 2022 - cambridge.org
Shame is an emotion most of us are well familiar with and has taken an increasing role in
public discourse in the last couple of years. While design literature has seen a strong …

Understanding Contexts and Challenges of Information Management for Epilepsy Care

A Min, WR Miller, LM Rocha, K Börner… - Proceedings of the …, 2023 - dl.acm.org
Epilepsy is a common chronic neurological disease. People with epilepsy (PWE) and their
caregivers face several challenges related to their epilepsy management, including quality …

Supporting reflection on medication adherence: Eliminating a blind spot in our rearview mirror

M Lengwe, JH Weber, C Perin… - 2023 IEEE 31st …, 2023 - ieeexplore.ieee.org
Prescription medications are a vital form of medical intervention. About two thirds of adults in
Canada and the US have prescribed medications and statistics in comparable countries are …

[HTML][HTML] A Trauma-Informed, Geospatially Aware, Just-in-Time Adaptive mHealth Intervention to Support Effective Coping Skills Among People Living With HIV in New …

SJ Skeen, S Tokarz, RE Gasik… - JMIR Research …, 2023 - researchprotocols.org
Background: In 2020, Greater New Orleans, Louisiana, was home to 7048 people living with
HIV—1083 per 100,000 residents, 2.85 times the US national rate. With Louisiana routinely …

Community-Engaged Participatory Methods to Address LGBTQ+ Young People's Health Information Needs With a Resource Website: Participatory Design and …

D Delmonaco, S Li, C Paneda, E Popoff, L Hughson… - 2023 - deepblue.lib.umich.edu
Background: Lesbian, gay, bisexual, transgender, queer, and questioning (LGBTQ+) young
people (aged 15 to 25 years) face unique health challenges and often lack resources to …

Transforming Queer Health Technologies Through Community-Based Systems Design

CA Liang - 2023 - search.proquest.com
Technologists are often motivated to do good in the world, laying out grand visions for how
to optimize systems, automate tedious tasks, and expand what is possible. However, these …