Background A person's chronic health condition or disability can have a huge impact on the
quality of life (QoL) of the whole family, but this important impact is often ignored. This …

There are several scoring systems presently available to classify disease severity in
ulcerative colitis [UC] within the multiple domains of disease activity, which aid objective …

Abstract Background and Aims Inflammatory Bowel Disease (IBD) affects patients and their
family members, but most reviews have focused only on patients themselves. This review …

Canada has among the highest rates of childhood-onset IBD in the world. Over 7000
children and youth under 18 years old are living with IBD in Canada, and 600 to 650 …

Background The current transition literature is a fragmented assortment of studies examining
select subsections of transition stakeholders. Methods Adolescent/young adult patients with …

Purpose Research on families coping with pediatric chronic illnesses has established that
children and parents are affected by the illness. Therefore, optimal assessment of parent …

Incidence of inflammatory bowel disease (IBD) is increasing in developed countries, and
children are being diagnosed at earlier ages. The impact of IBD on children and their …

Background Parents of children with cancer are at risk for impaired health‐related quality of
life (HRQoL). Most prior research has focused on the HRQoL of mothers. The aim of this …

Quality of life (QOL) is a key aspect of the health care process for children with chronic
diseases and their families. Although clinical evidence regarding the impact of chronic …

Background The impact on health related quality of life (HRQL) has been well studied in
children with Immunoglobulin E (IgE)-mediated food allergy. However limited data exists on …