Background Systematic reviews of outcome measurement instruments are important tools
for the selection of instruments for research and clinical practice. Our aim was to assess the …

The patient is the centre of a web of relationships, and the impact of his/her disease on
family members and caregivers must be taken into account. The aim of this study was to …

OBJECTIVES To fulfill the promise of a life of dignity, autonomy, and independence for
children and youth with special health care needs (CYSHCN) and their families, greater …

Methods: The EOSQ-24 was administered to caregivers of male and female patients aged 0
to 18 years with EOS. Patients with EOS are diagnosed before 10 years of age. Criterion …

Purpose To synthesize the body of knowledge on the factors influencing the QoL of mothers
and fathers of preterm infants. Methods A scoping review was performed. Publications …

Introduction The intent of this analysis was to examine the longitudinal effects of risk and
protective factors on quality of life (QOL) in caregivers of minority children with asthma …

Objectives To identify the themes to inform the content of a new generic measure, the EQ
Health and Wellbeing (EQ-HWB), that can be used in economic evaluation across health …

Purpose Indigenous conceptions of health have been shown to differ from that of their non-
Indigenous counterparts. As a result, there remains uncertainty over the appropriateness …

This study analyzed the psychological adjustment of parents of children and adolescents
with Type 1 diabetes (T1D) and examined whether family cohesion and parental adjustment …

Individuals with intellectual disability (ID) face significant challenges in preventing oral
diseases. They also lack access to high-quality oral health care in professional settings. To …