The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …

Aims and objectives To investigate the experiences of patients with intellectual disabilities,
family and paid carers regarding the role of liaison nurses and the delivery of …

Older individuals with CdLS appear to be at greater risk of poorer psychological wellbeing
than younger peers with significant implications for risk informed preventive and early …

Definitions of adulthood for people with intellectual disability are often complicated, with
milestones being markedly different for this population. This is then associated with …

There is evidence in the literature that youth with intellectual/developmental disabilities
(IDD) experience mental health issues to a greater extent compared to youth without IDD. In …

Background Moving out of the family home is a key transition for people with intellectual
disabilities and their families. Yet there has been little research about parents' experiences …

Autism was initially identified as a discrete entity in 1943. This now recognized group of
disorders is often identified in children, but is a lifelong disorder requiring specialized …

Purpose Structured HCT models addressing planning, transfer, and integration into adult
care for adolescents and young adults with childhood-acquired chronic conditions are …

During the period of school–work transition, caregivers of young adults with disorders of
intellectual development (ID) often play an extended and leading role in supporting their …

Aim This study formed the third phase of a national study on the experience of transition from
child to adult health services for young adults with intellectual disabilities. The aim of this …