The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments

J Rix, HG Carrizosa, J Seale, K Sheehy… - Disability & …, 2020 - Taylor & Francis
This paper reports on the first systematic review of literature associated with participatory
research involving people identified with sensory impairments and/or intellectual …

Are individuals with intellectual and developmental disabilities included in research? A review of the literature

KE Jones, S Ben-David, R Hole - Research and Practice in …, 2020 - Taylor & Francis
The rights of people with intellectual and developmental disabilities to be included in
research is increasingly being recognised. Given this, there is a need for further …

Emergent analysis and dissemination within participatory research

J Rix, H Garcia-Carrizosa, S Hayhoe… - … Journal of Research …, 2021 - Taylor & Francis
Authentic participation involving jointly undertaken analysis of data and dissemination of
findings is rarely evident in participatory research involving disabled people. This paper …

In pursuit of ethical and inclusive research: What ethics committees and disability researchers can learn from each other

M Walsh, V Stead, SM Sawyer… - International …, 2024 - journals.sagepub.com
Across disciplines, qualitative researchers have documented epistemological and practical
tensions in the ethical review of community-based and participatory research, with many …

Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?

M Walsh, I Harman, P Manning… - International …, 2024 - journals.sagepub.com
People who use augmentative and alternative communication (AAC) are frequently
excluded from research, yet their voices can significantly enhance the applicability …

'Moving on'for Adults With a Learning Disability and Their Families: A Constructivist Grounded Theory Study

B Taylor, J Thompson, T Ryan - Qualitative Health Research, 2024 - journals.sagepub.com
Ending familial co-residence, termed 'moving on'by participants, is an increasingly relevant
life transition for people with a learning disability due to increasing life expectancy and …

Safety and harm in school: promoting the perspectives of students with intellectual disability

S Robinson - Journal of Research in Special Educational …, 2018 - Wiley Online Library
Violence and abuse towards schools students with intellectual disability is a pervasive and
long‐standing problem. In recent research conducted with students with intellectual …

Impact of organisational practices on the relationships between young people with disabilities and paid social support workers

KR Fisher, S Robinson, K Neale… - Journal of Social …, 2021 - journals.sagepub.com
This article uses Ikäheimo's concept of institutionally mediated recognition to explore how
organisational norms and rules facilitate and constrain interpersonal recognition between a …

[HTML][HTML] Recognition in relationships between young people with cognitive disabilities and support workers

S Robinson, M Blaxland, KR Fisher, K Johnson… - Children and Youth …, 2020 - Elsevier
The research used Honneth's interpersonal recognition theory (caring about, respecting and
valuing), mediated by the institutional context, to explore how young people with cognitive …

Strategies to promote the inclusion of young adults with developmental disabilities in community-based health studies

LM Vazquez, N Khanlou… - Qualitative Health …, 2019 - journals.sagepub.com
We discuss strategies to promote the inclusion of people with developmental disabilities
(DDs) in qualitative community-based research studies. Strategies were applied in three …