The Defining Characteristics of Ethics Papers on Social Media Research: A Systematic Review of the Literature

MS Al-Zaman, A Khemka, A Zhang… - Journal of Academic …, 2024 - Springer
The growing significance of social media in research demands new ethical standards and
practices. Although a substantial body of literature on social media ethics exists, studies on …

Incorporating patient generated health data into pharmacoepidemiological research

A Bourke, WG Dixon, A Roddam, KJ Lin… - … and drug safety, 2020 - Wiley Online Library
Epidemiology and pharmacoepidemiology frequently employ Real‐World Data (RWD) from
healthcare teams to inform research. These data sources usually include signs, symptoms …

From FAIR data to fair data use: Methodological data fairness in health-related social media research

S Leonelli, R Lovell, BW Wheeler… - Big Data & …, 2021 - journals.sagepub.com
The paper problematises the reliability and ethics of using social media data, such as
sourced from Twitter or Instagram, to carry out health-related research. As in many other …

Boundaries between research ethics and ethical research use in artificial intelligence health research

G Samuel, J Chubb, G Derrick - Journal of Empirical …, 2021 - journals.sagepub.com
The governance of ethically acceptable research in higher education institutions has been
under scrutiny over the past half a century. Concomitantly, recently, decision makers have …

Qualitative research for quantitative researchers

H Kara - 2022 - torrossa.com
If you're reading this book, you are probably a quantitative researcher, or a teacher of
quantitative research, or both. Maybe you have to learn how to do qualitative research for …

Public trust and trustworthiness in biobanking: the need for more reflexivity

G Samuel, R Broekstra, F Gille… - Biopreservation and …, 2022 - liebertpub.com
Low levels of public trust in biobanks are perceived to be a deterrent to participation and a
threat to their sustainability. Acting in a “trustworthy” manner is seen to be one approach to …

Governing AI‐driven health research: Are IRBs up to the task?

P Friesen, R Douglas‐Jones, M Marks… - Ethics & Human …, 2021 - Wiley Online Library
Many are calling for concrete mechanisms of oversight for health research involving artificial
intelligence (AI). In response, institutional review boards (IRBs) are being turned to as a …

[HTML][HTML] Spread of COVID-19 vaccine misinformation in the ninth inning: retrospective observational infodemic study

AJ Calac, MR Haupt, Z Li, T Mackey - Jmir Infodemiology, 2022 - infodemiology.jmir.org
Background: Shortly after Pfizer and Moderna received emergency use authorizations from
the Food and Drug Administration, there were increased reports of COVID-19 vaccine …

Ethical and methodological issues in gang ethnography in the digital age: lessons from four studies in an emerging field

MM Urbanik, R Roks, ML Storrod, J Densley - Gangs in the Era of internet …, 2020 - Springer
Urban ethnographers studying gangs and troublesome youth groups have traditionally
faced distinct ethical and methodological challenges in their work as compared to other …

Harnessing the power of social media: how can it help in axial spondyloarthritis research?

K Reuter, A Danve, A Deodhar - Current opinion in rheumatology, 2019 - journals.lww.com
Rheumatologists now have the opportunity to use social media and innovate on many
aspects of their practice. We propose further exploration of multiple ways in which social …