Breast cancer germline genetic counseling and testing for populations of African heritage globally: a scoping review on research, practice, and bioethical …

Y Iwai, K Toumbou, T Zuze, JS Morgan… - JCO Global …, 2023 - ascopubs.org
PURPOSE Despite the disproportionately high risk of breast cancer among women of
African heritage, little is known about the facilitators and barriers to implementing germline …

Serum exosomal-annexin A2 is associated with African-American triple-negative breast cancer and promotes angiogenesis

P Chaudhary, LD Gibbs, S Maji, CM Lewis… - Breast cancer …, 2020 - Springer
Background Limited information is available on biomarker (s) for triple-negative breast
cancer (TNBC) that can address the higher incidence and aggressiveness of TNBC in …

A scoping review of social and behavioral science research to translate genomic discoveries into population health impact

CG Allen, S Peterson, MJ Khoury… - Translational …, 2021 - academic.oup.com
Since the completion of the Human Genome Project, progress toward translating genomic
research discoveries to address population health issues has been limited. Several …

Why patients decline genomic sequencing studies: experiences from the CSER consortium

LM Amendola, JO Robinson, R Hart, S Biswas… - Journal of Genetic …, 2018 - Springer
Clinical and research settings are increasingly incorporating genomic sequencing (GS)
technologies. Previous research has explored reasons for declining genetic testing and …

[HTML][HTML] Strategies of inclusion: The tradeoffs of pursuing “baked in” diversity through place-based recruitment

JK Shim, M Bentz, E Vasquez, M Jeske… - Social Science & …, 2022 - Elsevier
US funding agencies have begun to institutionalize expectations that biomedical studies
achieve defined thresholds for diversity among research participants, including in precision …

Lessons learned from the pilot phase of a population-wide genomic screening program: building the base to reach a diverse cohort of 100,000 participants

CG Allen, L Lenert, K Hunt, A Jackson, E Levin… - Journal of Personalized …, 2022 - mdpi.com
Background and Objectives: Genomic information is increasingly relevant for disease
prevention and risk management at the individual and population levels. Screening healthy …

Demographic differences in willingness to provide broad and narrow consent for biobank research

AT Ewing, LAH Erby, J Bollinger, E Tetteyfio… - Biopreservation and …, 2015 - liebertpub.com
Purpose: This study examined acceptability of two biobank consent models and evaluated
the impact of beliefs about privacy and genetic safeguards on acceptance. Methods: US …

Adolescents' and young adults' aesthetics and functionality preferences for online tobacco education

AJ Lazard, J Pikowski, L Horrell, JC Ross… - Journal of Cancer …, 2020 - Springer
As cigarette use rates decline among adolescents and young adults, public health officials
face new challenges with high use of non-cigarette tobacco products (NCTPs). Online …

[HTML][HTML] Why African Americans say “no”: a study of pharmacogenomic research participation

M Nooruddin, C Scherr, P Friedman… - Ethnicity & …, 2020 - ncbi.nlm.nih.gov
Why African Americans say “No”: A Study of Pharmacogenomic Research Participation - PMC
Back to Top Skip to main content NIH NLM Logo Access keys NCBI Homepage MyNCBI …

Engaging community stakeholders in research on best practices for clinical genomic sequencing

I Griesemer, BS Staley, AF Lightfoot, L Bain… - Personalized …, 2020 - Taylor & Francis
Aim: Maximizing the utility and equity of genomic sequencing integration in clinical care
requires engaging patients, their families, and communities. The NCGENES 2 &# x00A0; …