Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced
information, and other data sources have enabled research by new classes of researchers …

Background As citizen science continues to grow in popularity, there remains disagreement
about what terms should be used to describe citizen science activities and participants. The …

Resumen The National Institutes of Health (NIH) is the largest funding agency for biomedical
and behavioral research in the United States, supporting basic, translational, and clinical …

Genomic citizen science initiatives that promote public involvement in the study or
manipulation of genetic information are flourishing. These initiatives are diverse and range …

Participatory research in multiple forms is rapidly gaining ground and stands to provide
valuable benefits in the area of health research. Citizen science, an increasingly popular …

Non-establishment or do-it-yourself (DIY) science involves individuals who may not have
formal training conducting experiments outside of institutional settings. While prior …

Abstract In the United States, institutions of scientific and medical ethics developed out of
histories that continue to shape their principles and scope of concerns. Many have identified …

The practice of medicine is typically conceptualized as remaining within the boundaries of a
hospital or clinic. However, in recent years, patients have been able to gain access to …

Citizen science projects relevant to human health and the biosciences are on the rise.
Initiated, executed, and championed by individuals from diverse disciplinary and …

Much of the analysis of the public health legal and regulatory mechanisms that potentially
apply to biomedical citizen science activities in the United States has focused on the federal …