[HTML][HTML] High overlap in patients diagnosed with hypermobile Ehlers-Danlos syndrome or hypermobile spectrum disorders with fibromyalgia and 40 self-reported …

DL Fairweather, KA Bruno, AA Darakjian… - Frontiers in …, 2023 - frontiersin.org
Background: Joint pain is a common symptom in patients with hypermobile Ehlers-Danlos
Syndrome (hEDS), hypermobility spectrum disorders (HSD) and fibromyalgia. The goal of …

Development of a multidisciplinary clinic for patients with Ehlers Danlos syndromes: considerations and strategies

WR Black, JT Jones, ET Rush… - Journal of …, 2023 - Taylor & Francis
Abstract Ehlers-Danlos Syndromes (EDS) is a group of connective tissue disorders often
encountered within rheumatology clinics and is associated with several overlapping …

An exploration of the journey to diagnosis of Ehlers-Danlos Syndrome (EDS) for women living in Australia

R Trudgian, T Flood - Plos one, 2024 - journals.plos.org
Introduction Ehlers-Danlos syndromes (EDS) is an umbrella term for a group of hereditary
connective tissue disorders usually featuring hyperextensible skin, easy bruising, poor …

Diagnosis and treatment of the Ehlers-Danlos syndromes in China: synopsis of the first guidelines

K Xu, G Li, Z Wu, TJ Zhang, N Wu… - Orphanet Journal of …, 2024 - Springer
Abstract Background The Ehlers-Danlos syndromes (EDS) are a group of rare hereditary
connective tissue disorders. EDS is clinically and genetically heterogeneous and usually …

Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region

W Wagner, TA Doyle, CA Francomano… - Orphanet Journal of …, 2024 - Springer
Abstract Background The Ehlers-Danlos Syndromes (EDS) are a group of connective tissue
disorders that are hereditary in nature and characterized by joint hypermobility and tissue …

Cardiac defects of hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: a retrospective cohort study

DRT Knight, KA Bruno, A Singh, B Munipalli… - Frontiers in …, 2024 - frontiersin.org
Background Defective connective tissue structure may cause individuals with hypermobile
Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) to develop …

A 23-year-old with chronic pain and fainting spells–A clinical vignette

AN Ploeg, J Courseault… - American Journal of …, 2024 - journals.lww.com
Care for and clinical presentation of patients with connective tissue disorders, specifically
Hypermobile Ehlers-Danlos Syndrome, is poorly understood. Diagnosis can often take …

Patient and Parent Knowledge, Understanding, and Concerns After a New Diagnosis of Ehlers Danlos Syndrome

JT Jones, LL Black, WR Black - 2024 - researchsquare.com
Abstract Introduction: After diagnosis of Ehlers Danlos Syndrome (EDS), it is unclear what
information patients and parents need and understand about EDS. The objective of this …