Background Despite being a core business of medicine, end of life care (EoLC) is neglected.
It is hampered by research that is difficult to conduct with no common standards. We aimed …

Context Patient-centered outcome measures (PCOMs) are an important way of promoting
patient-professional communication. However, evidence regarding their implementation in …

Background To improve palliative care practice, the need for patients-reported outcome
measures is increasing globally. The Integrated Palliative care Outcome Scale (IPOS) is a …

Background We modified and evaluated an advance care planning (ACP) intervention,
which had been shown to improve compliance with patient's end of life (EoL) wishes, in a …

Background Missing data are common in end-of-life care studies, but there is still relatively
little exploration of which is the best method to deal with them, and, in particular, if the …

BACKGROUND People with advanced dementia who live and die in nursing homes
experience variable quality of life, care and dying. There is a need to identify appropriate …

Context A major barrier to widening and sustaining palliative care service provision is the
requirement for better selection and use of outcome measures. Service commissioning is …

Background Assessment of people with dementia is challenging; with undetected and under
treated symptoms and concerns resulting in avoidable distress, and few evidence-based …

Patients with chronic heart failure (CHF) have symptoms and concerns which are
inadequately addressed. Patient-reported outcome measures (PROMs) can potentially …

Background Clinical care alone at the end of life is unlikely to meet all needs. Volunteers are
a key resource, acceptable to patients, but there is no evidence on care outcomes. This …