The informal family caregiver burden (IFCB) for chronically ill bedridden elderly patients
(CIBEPs) is a major issue worldwide. It is a significant challenge due to the ongoing …

Background: Globally, an estimated eight million children could benefit from palliative care
each year. Effective communication about children with life-limiting conditions is well …

Background: Palliative care is an essential component of children's health services but is
accessed by fewer children than could potentially benefit. Aim: Appraise the evidence to …

Children's agency in their own lives is increasingly recognised as important, including within
paediatric health care. The issue of acknowledging child agency is complex in the context of …

Background While the populations of children who can benefit from paediatric palliative care
(PPC) have been broadly defined, identifying individual patients to receive PPC has been …

Objective To identify barriers, as perceived by parents, to good care for children with life-
threatening conditions. Design In a nationwide qualitative study, we held in-depth interviews …

The purpose of palliative care (PC) is to minimize suffering and improve quality of life.
Although PC has been well studied, the experience of neonatal intensive care unit (NICU) …

Objetivo: Este estudio propone explorar la realidad de los cuidadores formales de personas
con enfermedades crónicas, degenerativas y en cuidados paliativos, analizando las …

Developing palliative care units is necessary in healthcare systems, especially in hospitals
with paediatric haematology-oncology services. It has to be acknowledged that children with …

Objectives: Parents who have children with complex lifelong and life-limiting neurological
conditions experienced many stresses and anxieties throughout their lives as caregivers …