Navigating the pathway to care in adults with cerebral palsy

EA Hurvitz, DG Whitney, B Waldron-Perrine… - Frontiers in …, 2021 - frontiersin.org
As individuals with cerebral palsy (CP) age, they face unique challenges which complicate
their ability to access and receive appropriate health care. These problems exist at the level …

Adults with cerebral palsy and chronic pain experience: A cross-sectional analysis of patient-reported outcomes from a novel North American registry

CA Sarmiento, ME Gannotti, PH Gross… - Disability and Health …, 2024 - Elsevier
Background Chronic pain is common among adults with cerebral palsy (CP) and an area of
priority for research and treatment. Objective Describe the pain experience and its functional …

Adults with cerebral palsy and functional decline: A cross-sectional analysis of patient-reported outcomes from a novel North American registry

ME Gannotti, CA Sarmiento, PH Gross… - Disability and Health …, 2024 - Elsevier
Background Adults with cerebral palsy (CP) have unique healthcare needs and risks,
including high risk of functional decline. Understanding functional decline is an area of …

Racial and Ethnic Inequities in Use of Preventive Services Among Privately Insured Adults With a Pediatric-Onset Disability

L Groskaufmanis, P Lin, N Kamdar… - The Annals of Family …, 2022 - Annals Family Med
PURPOSE Cerebral palsy (CP) and spina bifida (SB) are pediatric-onset disabilities. Adults
living with CP/SB are in a greater need of preventive care than the general population due to …

Home-based motorised cycling in Non-ambulant adults with cerebral palsy: a feasibility study

C Holmes, N Shields, P Morgan, K Brock… - Disability and …, 2024 - Taylor & Francis
Purpose The primary aim was to establish feasibility of a home-based motorised cycling
intervention in non-ambulant adults with cerebral palsy (CP). The secondary aim was to …

[HTML][HTML] Use of preventive service and potentially preventable hospitalization among American adults with disability: Longitudinal analysis of Traditional Medicare and …

E Mahmoudi, P Lin, D Rubenstein, T Guetterman… - Preventive Medicine …, 2024 - Elsevier
Objective Examine the association between traditional Medicare (TM) vs. commercial
insurance and the use of preventive care and potentially preventable hospitalization (PPH) …

Exploring the unmet needs of adults with cerebral palsy living in urban South Africa

R Salie, S Kleintjes, MM Eken, KA Donald… - Disability and …, 2024 - Taylor & Francis
Purpose The investigators aimed to understand the unmet needs of adults with cerebral
palsy (CP) living in urban South Africa and to ascertain similarities or differences to typically …

Policy brief: adaptive cycling equipment for individuals with neurodevelopmental disabilities as durable medical equipment

ME Gannotti, ME O'Neil, M Fragala-Pinkham… - Frontiers in …, 2023 - frontiersin.org
-Durable medical equipment (DME) policies require that the equipment be medically
necessary; however, adaptive cycling equipment (bicycles and tricycles) are usually not …

Multimorbidities and quality of life in adult cerebral palsy over 40 years

B Dogruoz Karatekin, A İcagasioglu, SN Sahin… - Acta Neurologica …, 2022 - Springer
Aim This study aimed to describe the most common combinations of comorbidities and their
relationship to quality of life in a sample of adults over 40 years of age with cerebral palsy …

Experiences of young adults with cerebral palsy in pediatric care transitioning to adult care

CA Sarmiento, JM Wyrwa, C Glaros… - … Medicine & Child …, 2024 - Wiley Online Library
Aim To increase understanding regarding the experiences and values of young adults with
cerebral palsy (CP), and their caregivers, regarding pediatric rehabilitation‐related care …