Navigating the pathway to care in adults with cerebral palsy
EA Hurvitz, DG Whitney, B Waldron-Perrine… - Frontiers in …, 2021 - frontiersin.org
As individuals with cerebral palsy (CP) age, they face unique challenges which complicate
their ability to access and receive appropriate health care. These problems exist at the level …
their ability to access and receive appropriate health care. These problems exist at the level …
Adults with cerebral palsy and chronic pain experience: A cross-sectional analysis of patient-reported outcomes from a novel North American registry
CA Sarmiento, ME Gannotti, PH Gross… - Disability and Health …, 2024 - Elsevier
Background Chronic pain is common among adults with cerebral palsy (CP) and an area of
priority for research and treatment. Objective Describe the pain experience and its functional …
priority for research and treatment. Objective Describe the pain experience and its functional …
Adults with cerebral palsy and functional decline: A cross-sectional analysis of patient-reported outcomes from a novel North American registry
ME Gannotti, CA Sarmiento, PH Gross… - Disability and Health …, 2024 - Elsevier
Background Adults with cerebral palsy (CP) have unique healthcare needs and risks,
including high risk of functional decline. Understanding functional decline is an area of …
including high risk of functional decline. Understanding functional decline is an area of …
Racial and Ethnic Inequities in Use of Preventive Services Among Privately Insured Adults With a Pediatric-Onset Disability
PURPOSE Cerebral palsy (CP) and spina bifida (SB) are pediatric-onset disabilities. Adults
living with CP/SB are in a greater need of preventive care than the general population due to …
living with CP/SB are in a greater need of preventive care than the general population due to …
Home-based motorised cycling in Non-ambulant adults with cerebral palsy: a feasibility study
Purpose The primary aim was to establish feasibility of a home-based motorised cycling
intervention in non-ambulant adults with cerebral palsy (CP). The secondary aim was to …
intervention in non-ambulant adults with cerebral palsy (CP). The secondary aim was to …
[HTML][HTML] Use of preventive service and potentially preventable hospitalization among American adults with disability: Longitudinal analysis of Traditional Medicare and …
Objective Examine the association between traditional Medicare (TM) vs. commercial
insurance and the use of preventive care and potentially preventable hospitalization (PPH) …
insurance and the use of preventive care and potentially preventable hospitalization (PPH) …
Exploring the unmet needs of adults with cerebral palsy living in urban South Africa
Purpose The investigators aimed to understand the unmet needs of adults with cerebral
palsy (CP) living in urban South Africa and to ascertain similarities or differences to typically …
palsy (CP) living in urban South Africa and to ascertain similarities or differences to typically …
Policy brief: adaptive cycling equipment for individuals with neurodevelopmental disabilities as durable medical equipment
ME Gannotti, ME O'Neil, M Fragala-Pinkham… - Frontiers in …, 2023 - frontiersin.org
-Durable medical equipment (DME) policies require that the equipment be medically
necessary; however, adaptive cycling equipment (bicycles and tricycles) are usually not …
necessary; however, adaptive cycling equipment (bicycles and tricycles) are usually not …
Multimorbidities and quality of life in adult cerebral palsy over 40 years
B Dogruoz Karatekin, A İcagasioglu, SN Sahin… - Acta Neurologica …, 2022 - Springer
Aim This study aimed to describe the most common combinations of comorbidities and their
relationship to quality of life in a sample of adults over 40 years of age with cerebral palsy …
relationship to quality of life in a sample of adults over 40 years of age with cerebral palsy …
Experiences of young adults with cerebral palsy in pediatric care transitioning to adult care
CA Sarmiento, JM Wyrwa, C Glaros… - … Medicine & Child …, 2024 - Wiley Online Library
Aim To increase understanding regarding the experiences and values of young adults with
cerebral palsy (CP), and their caregivers, regarding pediatric rehabilitation‐related care …
cerebral palsy (CP), and their caregivers, regarding pediatric rehabilitation‐related care …