Health-related quality of life and symptom reporting: similarities and differences between children and their parents

C Eiser, JW Varni - European journal of pediatrics, 2013 - Springer
Health-related quality of life (HRQOL) is increasingly seen as important to reflect the impact
of an illness and its treatment on a patient from the patient's perspective. However, there …

Outcomes in pediatric solid‐organ transplantation

C LaRosa, H Jorge Baluarte… - Pediatric …, 2011 - Wiley Online Library
LaRosa C, Jorge Baluarte H, Meyers KEC. Outcomes in pediatric solid‐organ
transplantation. Pediatr Transplantation 2011: 15: 128–141.© 2010 John Wiley & Sons A/S …

Health-related quality of life in pediatric patients with functional and organic gastrointestinal diseases

JW Varni, CB Bendo, S Nurko, RJ Shulman… - The Journal of …, 2015 - Elsevier
Objective To compare health-related quality of life (HRQOL) in pediatric patients with
functional gastrointestinal disorders (FGIDs) and organic gastrointestinal (GI) diseases with …

Long-term patient outcome and quality of life after liver transplantation: analysis of 20-year survivors

JP Duffy, K Kao, CY Ko, DG Farmer… - Annals of …, 2010 - journals.lww.com
Objective: To evaluate patient survival and allograft function and health-related quality of life
(HRQOL) 20 years after orthotopic liver transplantation (LT). Summary of Background Data …

Health status of children alive 10 years after pediatric liver transplantation performed in the US and Canada: report of the studies of pediatric liver transplantation …

VL Ng, EM Alonso, JC Bucuvalas, G Cohen… - The Journal of …, 2012 - Elsevier
OBJECTIVES: To determine clinical and health-related quality of life outcomes, and to derive
an “ideal” composite profile of children alive 10 years after pediatric liver transplantation (LT) …

Health‐related quality of life after pediatric liver transplantation: a systematic review

A Parmar, SM Vandriel, VL Ng - Liver Transplantation, 2017 - journals.lww.com
With improved survival rates after pediatric liver transplantation (LT), attention is targeting
improving the health‐related quality of life (HRQOL) as an outcome metric. We conducted a …

PedsQL™ Gastrointestinal Symptoms Scales and Gastrointestinal Worry Scales in pediatric patients with functional and organic gastrointestinal diseases in …

JW Varni, CB Bendo, J Denham, RJ Shulman… - Quality of Life …, 2015 - Springer
Objective The primary objective was to compare the gastrointestinal (GI) symptoms and
worry of pediatric patients with functional GI disorders (FGIDs) and organic GI diseases to …

Long-term outcomes of children after solid organ transplantation

JJ Kim, SD Marks - Clinics, 2014 - SciELO Brasil
Solid organ transplantation has transformed the lives of many children and adults by
providing treatment for patients with organ failure who would have otherwise succumbed to …

[HTML][HTML] Cognitive and academic outcomes after pediatric liver transplantation: Functional Outcomes Group (FOG) results

LG Sorensen, K Neighbors, K Martz, F Zelko… - American Journal of …, 2011 - Elsevier
This multicenter study examined prevalence of cognitive and academic delays in children
following liver transplant (LT). One hundred and forty-four patients ages 5–7 and 2 years …

[PDF][PDF] Health‐related quality of life and cognitive functioning in pediatric liver transplant recipients

D Ohnemus, K Neighbors, K Rychlik… - Liver …, 2020 - Wiley Online Library
The goal of this work was to examine the change in health‐related quality of life (HRQOL)
and cognitive functioning from early childhood to adolescence in pediatric liver …