[HTML][HTML] Patient-reported outcomes in performance measurement
Patient-reported outcomes (PROs) are measures of how patients feel or what they are able
to do in the context of their health status; PROs are reports, usually on questionnaires, about …
to do in the context of their health status; PROs are reports, usually on questionnaires, about …
Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model
Objectives An appraisal of pediatric cancer-specific quality-of-life (QOL) instruments
revealed a lack of clarity about what constitutes QOL in this population. This study addresses …
revealed a lack of clarity about what constitutes QOL in this population. This study addresses …
Determinants of agreement between self-reported and parent-assessed quality of life for children in Germany-results of the German Health Interview and Examination …
U Ellert, U Ravens-Sieberer, M Erhart… - Health and quality of life …, 2011 - Springer
Background The aim of this study is to quantify the level of agreement between self-reporting
and proxy-assessment of children's health-related quality of life using KINDL-R in a large …
and proxy-assessment of children's health-related quality of life using KINDL-R in a large …
Correlation between cardio-pulmonary exercise test variables and health-related quality of life among children with congenital heart diseases
P Amedro, MC Picot, S Moniotte, R Dorka… - International journal of …, 2016 - Elsevier
Background Health-related quality of life (HR-QoL) stands as a determinant “patient-related
outcome” and correlates with cardio-pulmonary exercise test (CPET) in adults with chronic …
outcome” and correlates with cardio-pulmonary exercise test (CPET) in adults with chronic …
[PDF][PDF] Quality of life and chemotherapy-related symptoms of Turkish cancer children undergoing chemotherapy
This cross-sectional and descriptive study was designed to determine symptoms emerging
due to chemotherapy treatment and their effects on children's quality of life. The research …
due to chemotherapy treatment and their effects on children's quality of life. The research …
Quality of life in children with chronic kidney disease (with child and parent assessments)
Herein the results of a multicenter study from the Turkish Pediatric Kidney Transplantation
Study Group are reported. The aims of this study were to compare the quality of life (QoL) …
Study Group are reported. The aims of this study were to compare the quality of life (QoL) …
[PDF][PDF] Variables que predicen la aparición de sobrecarga en cuidadores primarios informales de niños con cáncer
XM Pardo, SJ Cárdenas, JM Venegas - Psicooncología, 2015 - core.ac.uk
El propósito del estudio fue identificar las variables psicológicas y las características del
cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de …
cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de …
Does hope matter? Associations among self-reported hope, anxiety, and health-related quality of life in children and adolescents with cancer
AR Martins, C Crespo, Á Salvador, S Santos… - Journal of clinical …, 2018 - Springer
This study aimed to examine the direct and indirect effects of hope on health-related quality
of life (HRQoL) via anxiety of children/adolescents with cancer. We proposed to test if the …
of life (HRQoL) via anxiety of children/adolescents with cancer. We proposed to test if the …
Measurement equivalence across child self-reports and parent-proxy reports in the Chinese version of the pediatric quality of life inventory version 4.0
An important assumption for comparing children's quality of life (QoL) between children's
and parents' perceptions is that measurement equivalence/invariance (ME/I) exists. The ME/I …
and parents' perceptions is that measurement equivalence/invariance (ME/I) exists. The ME/I …
Health-related quality of life in pediatric cancer survivors: a multifactorial assessment including parental factors
B Yagc-Küpeli, C Akyüz, S Küpeli… - Journal of pediatric …, 2012 - journals.lww.com
Aim: We aimed to evaluate the health-related quality of life (HRQOL) and the effect of
associated factors such as cancer type, treatment strategies, sex, age, and parental factors …
associated factors such as cancer type, treatment strategies, sex, age, and parental factors …