[HTML][HTML] Patient-reported outcomes in performance measurement

D Cella, EA Hahn, SE Jensen, Z Butt, CJ Nowinski… - 2015 - books.google.com
Patient-reported outcomes (PROs) are measures of how patients feel or what they are able
to do in the context of their health status; PROs are reports, usually on questionnaires, about …

Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model

SJ Anthony, E Selkirk, L Sung, RJ Klaassen, D Dix… - Quality of life …, 2014 - Springer
Objectives An appraisal of pediatric cancer-specific quality-of-life (QOL) instruments
revealed a lack of clarity about what constitutes QOL in this population. This study addresses …

Determinants of agreement between self-reported and parent-assessed quality of life for children in Germany-results of the German Health Interview and Examination …

U Ellert, U Ravens-Sieberer, M Erhart… - Health and quality of life …, 2011 - Springer
Background The aim of this study is to quantify the level of agreement between self-reporting
and proxy-assessment of children's health-related quality of life using KINDL-R in a large …

Correlation between cardio-pulmonary exercise test variables and health-related quality of life among children with congenital heart diseases

P Amedro, MC Picot, S Moniotte, R Dorka… - International journal of …, 2016 - Elsevier
Background Health-related quality of life (HR-QoL) stands as a determinant “patient-related
outcome” and correlates with cardio-pulmonary exercise test (CPET) in adults with chronic …

[PDF][PDF] Quality of life and chemotherapy-related symptoms of Turkish cancer children undergoing chemotherapy

FT Arslan, Z Basbakkal, M Kantar - Asian Pacific Journal of cancer …, 2013 - researchgate.net
This cross-sectional and descriptive study was designed to determine symptoms emerging
due to chemotherapy treatment and their effects on children's quality of life. The research …

Quality of life in children with chronic kidney disease (with child and parent assessments)

N Buyan, MA Türkmen, I Bilge, E Baskin, M Haberal… - Pediatric …, 2010 - Springer
Herein the results of a multicenter study from the Turkish Pediatric Kidney Transplantation
Study Group are reported. The aims of this study were to compare the quality of life (QoL) …

[PDF][PDF] Variables que predicen la aparición de sobrecarga en cuidadores primarios informales de niños con cáncer

XM Pardo, SJ Cárdenas, JM Venegas - Psicooncología, 2015 - core.ac.uk
El propósito del estudio fue identificar las variables psicológicas y las características del
cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de …

Does hope matter? Associations among self-reported hope, anxiety, and health-related quality of life in children and adolescents with cancer

AR Martins, C Crespo, Á Salvador, S Santos… - Journal of clinical …, 2018 - Springer
This study aimed to examine the direct and indirect effects of hope on health-related quality
of life (HRQoL) via anxiety of children/adolescents with cancer. We proposed to test if the …

Measurement equivalence across child self-reports and parent-proxy reports in the Chinese version of the pediatric quality of life inventory version 4.0

CY Lin, WM Luh, CP Cheng, AL Yang, CT Su… - Child Psychiatry & …, 2013 - Springer
An important assumption for comparing children's quality of life (QoL) between children's
and parents' perceptions is that measurement equivalence/invariance (ME/I) exists. The ME/I …

Health-related quality of life in pediatric cancer survivors: a multifactorial assessment including parental factors

B Yagc-Küpeli, C Akyüz, S Küpeli… - Journal of pediatric …, 2012 - journals.lww.com
Aim: We aimed to evaluate the health-related quality of life (HRQOL) and the effect of
associated factors such as cancer type, treatment strategies, sex, age, and parental factors …