The International Pediatric Adrenocortical Tumor Registry initiative: contributions to clinical, biological, and treatment advances in pediatric adrenocortical tumors

RC Ribeiro, EM Pinto, GP Zambetti… - Molecular and Cellular …, 2012 - Elsevier
Adrenocortical tumor (ACT), a rare tumor with a heterogeneous presentation, incompletely
understood pathogenesis, and generally poor prognosis, occurs in 1–2 people per million …

Rare cancers: Challenges & issues

RK Pillai, K Jayasree - Indian Journal of Medical Research, 2017 - journals.lww.com
Rare cancers account for about 22 per cent of all cancers diagnosed worldwide,
disproportionately affecting some demographic groups, with an occurrence of less than 6 …

[HTML][HTML] The Children's Hepatic tumors International Collaboration (CHIC): novel global rare tumor database yields new prognostic factors in hepatoblastoma and …

P Czauderna, B Haeberle, E Hiyama… - European Journal of …, 2016 - Elsevier
Introduction Contemporary state-of-the-art management of cancer is increasingly defined by
individualized treatment strategies. For very rare tumors, like hepatoblastoma, the …

Survival of European children and young adults with cancer diagnosed 1995–2002

G Gatta, G Zigon, R Capocaccia, JW Coebergh… - European Journal of …, 2009 - Elsevier
This study analyses survival in 40,392 children (age 0–14 years) and 30,187
adolescents/young adults (age 15–24 years) diagnosed with cancer between 1995 and …

[HTML][HTML] Defining and listing very rare cancers of paediatric age: consensus of the Joint Action on Rare Cancers in cooperation with the European Cooperative Study …

A Ferrari, IB Brecht, G Gatta, DT Schneider… - European journal of …, 2019 - Elsevier
Although all tumours are rare in childhood, there are some particularly rare paediatric
cancers which have not benefited from advances made by the international paediatric …

Distinct features of colorectal cancer in children and adolescents: a population‐based study of 159 cases

I Sultan, C Rodriguez‐Galindo… - … Journal of the …, 2010 - Wiley Online Library
BACKGROUND: Colorectal cancer is exceedingly rare in children and adolescents. Reports
from small series indicate that poor prognostic factors are more common in children than in …

Infrequent tumor initiative of the Children's Oncology Group: initial lessons learned and their impact on future plans

AS Pappo, M Krailo, Z Chen… - Journal of clinical …, 2010 - ascopubs.org
The merger of the Pediatric Oncology Group, Children's Cancer Group, the Intergroup
Rhabdomyosarcoma Study Group, and the National Wilms Tumor Study Group in 2000 …

Salivary gland carcinomas in children and adolescents: a population‐based study, with comparison to adult cases

I Sultan, C Rodriguez–Galindo, S Al‐Sharabati… - Head & …, 2011 - Wiley Online Library
Background. Salivary gland carcinomas are rare malignancies, particularly in young
individuals in whom only scanty data are available from published studies. Methods. We …

Pancreatoblastoma: a report from the European cooperative study group for paediatric rare tumours (EXPeRT)

E Bien, J Godzinski, P Dall'Igna, AS Defachelles… - European journal of …, 2011 - Elsevier
BACKGROUND: Pancreatoblastoma is a very rare malignant tumour typically occurring in
the early years of life. Due to its rarity, standardised diagnostic and therapeutic guidelines …

Pancreatic tumors in children and adolescents: the Italian TREP project experience

P Dall'Igna, G Cecchetto, G Bisogno… - Pediatric blood & …, 2010 - Wiley Online Library
Introduction Malignant pancreatic tumors are exceedingly rare in pediatric age and their
clinical features and treatment usually go unappreciated by most pediatric oncologists and …