An updated systematic review of studies mapping (or cross-walking) measures of health-related quality of life to generic preference-based measures to generate utility …

C Mukuria, D Rowen, S Harnan, A Rawdin… - … health economics and …, 2019 - Springer
Background Mapping is an increasingly common method used to predict instrument-specific
preference-based health-state utility values (HSUVs) from data obtained from another health …

Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review

M McNeill, S Noyek, E Engeda, N Fayed - Quality of Life Research, 2021 - Springer
Purpose To assess child and family engagement in the selection of patient-reported
outcomes for clinical studies/clinical settings and development of patient-reported outcome …

Development of a new quality of life measure for Duchenne muscular dystrophy using mixed methods: the DMD-QoL

PA Powell, J Carlton, D Rowen, F Chandler… - Neurology, 2021 - AAN Enterprises
Objective Based on concerns about existing patient-reported outcome measures (PROMs)
for assessing quality of life (QoL) in Duchenne muscular dystrophy (DMD), we describe the …

Application of rasch analysis for development and psychometric properties of adolescents' quality of life instruments: a systematic review

S Dabaghi, F Esmaielzadeh… - … health, medicine and …, 2020 - Taylor & Francis
Background Due to the importance of assessing quality of life (QoL) in healthy and ill
adolescents, the evaluation of psychometric properties of these questionnaires is important …

[图书][B] Childhood obesity: causes, consequences, and intervention approaches

MI Goran - 2016 - taylorfrancis.com
Childhood obesity has reached epidemic proportions in the United States and continues to
increase in prevalence in almost all countries in which it has been studied, including …

A scoping review to create a framework for the steps in developing condition-specific preference-based instruments de novo or from an existing non-preference-based …

TCO Tsui, SC Torres, JM Bielecki, N Mitsakakis… - Health and Quality of …, 2024 - Springer
Background There is no widely accepted framework to guide the development of condition-
specific preference-based instruments (CSPBIs) that includes both de novo and from …

Valuing selected WAItE health states using the Time Trade-Off methodology: findings from an online interviewer-assisted remote survey

T Robinson, S Hill, G Orozco-Leal, A Kernohan… - Journal of Patient …, 2024 - Springer
Abstract Purpose The Weight-Specific Adolescent Instrument for Economic Evaluation
(WAItE) is a physical weight-specific patient reported outcome measure for use in …

Investigating the quality of life for children with autism spectrum disorder scale using Rasch methodology

LC Chezan, J Liu, R Gao, E Drasgow - Autism Research, 2023 - Wiley Online Library
Our purpose in this study was to provide additional psychometric evidence of the Quality of
Life for Children with Autism Spectrum Disorder (QOLASD‐C) scale. We used Rasch …

Developing the breast utility instrument to measure health-related quality-of-life preferences in patients with breast cancer: selecting the item for each dimension

TCO Tsui, ME Trudeau, N Mitsakakis… - MDM Policy & …, 2022 - journals.sagepub.com
Introduction. Generic preference-based instruments inadequately measure breast cancer
(BrC) health-related quality-of-life preferences given advances in therapy. Our overall …

[HTML][HTML] Measuring weight-specific quality of life in adolescents: an examination of the concurrent validity and test-retest reliability of the WAItE

Y Oluboyede, T Robinson - Value in Health, 2019 - Elsevier
Objectives To examine the concurrent validity of the Weight-specific Adolescent Instrument
for Economic evaluation (WAItE) as compared with the generic, preference-based Child …