Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008)

KI Stajduhar, L Funk, C Toye, GE Grande… - Palliative …, 2010 - journals.sagepub.com
The changing context of palliative care over the last decade highlights the importance of
recent research on home-based family caregiving at the end of life. This article reports on a …

A systematic review of informal caregivers' needs in providing home‐based end‐of‐life care to people with cancer

PE Bee, P Barnes, KA Luker - Journal of clinical nursing, 2009 - Wiley Online Library
Aims. This paper presents the results of a systematic review examining the practical
information needs of informal caregivers providing home‐based palliative and end‐of‐life …

Financial stress and strain associated with terminal cancer—a review of the evidence

B Hanratty, P Holland, A Jacoby… - Palliative …, 2007 - journals.sagepub.com
Financial circumstances are a significant influence on the quality of life for older people and
may be important to health and wellbeing at the end of life. The aim of this study is to review …

Hospice care delivered at home, in nursing homes and in dedicated hospice facilities: a systematic review of quantitative and qualitative evidence

B Candy, A Holman, B Leurent, S Davis… - International journal of …, 2011 - Elsevier
BACKGROUND: Hospice care supports patients and their families physically and
emotionally through the dying phase. In many countries a substantial portion of specialised …

The modified self: family caregivers' experiences of caring for a dying family member at home

I Carlander, E Sahlberg‐Blom, I Hellström… - Journal of clinical …, 2011 - Wiley Online Library
Aim. The aim of this study was to explore situations in daily life that challenge caregivers' self‐
image when caring for a dying family member at home. Background. Caregiving affects the …

Next‐of‐kin caregivers in palliative home care–from control to loss of control

B Munck, B Fridlund… - Journal of advanced …, 2008 - Wiley Online Library
Title. Next‐of‐kin caregivers in palliative home care‐from control to loss of control. Aim. This
paper is a report of a study to describe situations influencing next‐of‐kin caregivers' ability to …

Palliative care in the home: a scoping review of study quality, primary outcomes, and thematic component analysis

M Hofmeister, A Memedovich, LE Dowsett, L Sevick… - BMC Palliative Care, 2018 - Springer
Background The aim of palliative care is to improve the quality of life of patients and families
through the prevention and relief of suffering. Frequently, patients may choose to receive …

Common components of efficacious in‐home end‐of‐life care programs: A review of systematic reviews

D Bainbridge, H Seow… - Journal of the American …, 2016 - Wiley Online Library
Multiple randomized controlled trials on in‐home end‐of‐life (EOL) programs, often with
multifaceted and varying components, have shown benefits and reduced costs. The …

“Please, I want to go home”: ethical issues raised when considering choice of place of care in palliative care

VJ Wheatley, JI Baker - Postgraduate Medical Journal, 2007 - academic.oup.com
Many palliative care patients would prefer to receive care, and to die, at home. Despite this
many die in institutions. In response to this, politicians and charities have adopted policies …

Caregivers' experiences with medical aid-in-dying in Vermont: a qualitative study

M Buchbinder, E Ojo, L Knio, ER Brassfield - Journal of pain and symptom …, 2018 - Elsevier
Context Eight jurisdictions in the US currently permit medical aid-in-dying (AID), yet little is
known about the direct experience of caregivers in supporting a loved one through the …