Navigating and communicating about serious illness and end of life

VA Jackson, L Emanuel - New England Journal of Medicine, 2024 - Mass Medical Soc
Key Clinical Points Navigating and Communicating about Serious Illness and End of Life
Partnering with patients as they navigate serious illness requires effectively communicating …

Perception of prognosis, quality of life, and distress in patients receiving chimeric antigen receptor T‐cell therapy

TM Dhawale, PC Johnson, MR Gaballa, AM Nelson… - Cancer, 2023 - Wiley Online Library
Background Chimeric antigen receptor (CAR) T‐cell is potentially curative therapy for
patients with hematologic malignancies but can cause life‐threatening toxicities. Data on …

Quality of life, psychological distress, and prognostic perceptions in caregivers of patients with multiple myeloma

EK O'Donnell, YN Shapiro, AJ Yee, O Nadeem… - Blood …, 2022 - ashpublications.org
Although caregivers of patients with multiple myeloma (MM) play a critical role in supporting
their loved ones throughout the illness course, studies examining caregiver quality of life …

To accompany, always: Psychological elements of palliative care for the dying patient

LB Rosenberg, KO Brenner, D Shalev… - Journal of Palliative …, 2022 - liebertpub.com
Palliative care clinicians provide psychological support throughout their patients' journeys
with illness. Throughout our series exploring the psychological elements of palliative care …

Can oncologists prompt patient prognostic awareness to enhance decision-making? Data from the NEOetic Study

A Carmona-Bayonas, A Rodriguez-Gonzalez… - The …, 2023 - academic.oup.com
Introduction Anti-neoplastic therapy improves the prognosis for advanced cancer, albeit it is
not curative. An ethical dilemma that often arises during patients' first appointment with the …

Coping and Perception of Prognosis in Patients With Indolent Non-Hodgkin's Lymphoma

RA Newcomb, PC Johnson, D Yang… - The …, 2024 - academic.oup.com
Abstract Background Indolent non-Hodgkin's lymphomas (iNHL) are a heterogenous group
of mostly incurable diseases with prolonged illness courses and prognostic uncertainty. Yet …

JPSM controversies in palliative care:“What is the most important, measurable goal of serious illness conversations in the ambulatory setting?”

RM Arnold, K Levoy, SE Hickman, A El Jawahri… - Journal of Pain and …, 2024 - Elsevier
There is widespread agreement that clinicians should talk to seriously ill patients and their
families about their illnesses. However, advance directives as a quality metric have been …

Quality of Life and Prognostic Awareness in Caregivers of Patients Receiving Chimeric Antigen Receptor T Cell Therapy

A Barata, T Dhawale, RA Newcomb, HL Amonoo… - … and Cellular Therapy, 2024 - Elsevier
Caregivers of patients undergoing chimeric antigen receptor T cell therapy (CAR-T) play a
critical role during treatment, yet their experience remains largely unaddressed. We aimed to …

Prognostic awareness and its association with health outcomes in the last year of life

S Ozdemir, I Chaudhry, S Ng, I Teo… - Cancer …, 2023 - Wiley Online Library
Background Little research has examined changes in prognostic awareness (PA) in the last
year of life and the extent PA change was associated with anxiety, depression, and spiritual …

[HTML][HTML] Anticancer treatment goals and prognostic misperceptions among advanced cancer outpatients

CE Paiva, AC Teixeira, B Minto Lourenço… - International Journal of …, 2022 - mdpi.com
(1) Background: In the context of cancer incurability, the communication processes involving
clinicians and patients with cancer are frequently complex.(2) Methods: A cross-sectional …