Barriers and facilitators for the implementation of health condition and outcome registry systems: a systematic literature review

M Lazem, A Sheikhtaheri - Journal of the American Medical …, 2022 - academic.oup.com
Objective Health condition and outcome registry systems (registries) are used to collect data
related to diseases and other health-related outcomes in specific populations. The …

Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development

EJ See, M Alrukhaimi, GE Ashuntantang… - Kidney International …, 2018 - Elsevier
Development and planning of health care services requires robust health information
systems to define the burden of disease, inform policy development, and identify …

Building national patient registries in Mexico: insights from the MexOMICS Consortium

P Reyes-Pérez, AL Hernández-Ledesma… - Frontiers in Digital …, 2024 - frontiersin.org
Objective To introduce MexOMICS, a Mexican Consortium focused on establishing
electronic databases to collect, cross-reference, and share health-related and omics data on …

Barriers and facilitators for disease registry systems: a mixed-method study

M Lazem, A Sheikhtaheri - BMC Medical Informatics and Decision Making, 2022 - Springer
Abstract Background A Disease Registry System (DRS) is a system that collects standard
data on a specific disease with an organized method for specific purposes in a population …

Availability, coverage, and scope of health information systems for kidney care across world countries and regions

EJ See, AK Bello, A Levin, M Lunney… - Nephrology Dialysis …, 2022 - academic.oup.com
Background Health information systems (HIS) are fundamental tools for the surveillance of
health services, estimation of disease burden and prioritization of health resources. Several …

[HTML][HTML] Design and virtual implementation of a biomedical registry framework for the enhancement of clinical trials: colorectal cancer example

A Kotoulas, G Lambrou… - BMJ Health & Care …, 2019 - ncbi.nlm.nih.gov
Methods This paper describes the design and virtual implementation of a web based
prototype biomedical registry in Greece. The system represents an eGovernment framework …

An information‐based framework for development national twin registry: Scoping review and focus group discussion

H Abtahi, M Gholamzadeh… - … Journal of Health …, 2021 - Wiley Online Library
Background Registries in various clinical domains have been established in the last
decades. The specific genetic structure of twins has enabled researchers to find answers to …

[PDF][PDF] Designing a European gambling self-exclusion registry

T Gustafsson - Tallinn University of Technology, 2021 - digikogu.taltech.ee
Abstract The Gambling Self-Exclusion Registries are one of the e-Services offered from the
state level where an individual can ban himself/herself from any land-based or online-based …

Design and Development of an Open-Source Clinical Trial Registry (CTR) Template Aligned with Who International Standards

K Goel, S Rana, DP Goel, H Singh - Available at SSRN 4789897 - papers.ssrn.com
Objective: The objective of this study was to develop an open-source Clinical Trial Registry
(CTR) Template which can help in development of registries, aligned to the WHO …

Nephrology Worldwide: A Perspective from the International Society of Nephrology

T Chen, R Claure-Del Granado, K Hendricks… - Nephrology …, 2021 - Springer
There has been a marked rise in the social-economic burden of chronic kidney disease and
acute kidney injury over the past few decades. This chapter provides an overview of global …