Barriers and facilitators for the implementation of health condition and outcome registry systems: a systematic literature review
M Lazem, A Sheikhtaheri - Journal of the American Medical …, 2022 - academic.oup.com
Objective Health condition and outcome registry systems (registries) are used to collect data
related to diseases and other health-related outcomes in specific populations. The …
related to diseases and other health-related outcomes in specific populations. The …
Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development
EJ See, M Alrukhaimi, GE Ashuntantang… - Kidney International …, 2018 - Elsevier
Development and planning of health care services requires robust health information
systems to define the burden of disease, inform policy development, and identify …
systems to define the burden of disease, inform policy development, and identify …
Building national patient registries in Mexico: insights from the MexOMICS Consortium
P Reyes-Pérez, AL Hernández-Ledesma… - Frontiers in Digital …, 2024 - frontiersin.org
Objective To introduce MexOMICS, a Mexican Consortium focused on establishing
electronic databases to collect, cross-reference, and share health-related and omics data on …
electronic databases to collect, cross-reference, and share health-related and omics data on …
Barriers and facilitators for disease registry systems: a mixed-method study
M Lazem, A Sheikhtaheri - BMC Medical Informatics and Decision Making, 2022 - Springer
Abstract Background A Disease Registry System (DRS) is a system that collects standard
data on a specific disease with an organized method for specific purposes in a population …
data on a specific disease with an organized method for specific purposes in a population …
Availability, coverage, and scope of health information systems for kidney care across world countries and regions
Background Health information systems (HIS) are fundamental tools for the surveillance of
health services, estimation of disease burden and prioritization of health resources. Several …
health services, estimation of disease burden and prioritization of health resources. Several …
[HTML][HTML] Design and virtual implementation of a biomedical registry framework for the enhancement of clinical trials: colorectal cancer example
A Kotoulas, G Lambrou… - BMJ Health & Care …, 2019 - ncbi.nlm.nih.gov
Methods This paper describes the design and virtual implementation of a web based
prototype biomedical registry in Greece. The system represents an eGovernment framework …
prototype biomedical registry in Greece. The system represents an eGovernment framework …
An information‐based framework for development national twin registry: Scoping review and focus group discussion
H Abtahi, M Gholamzadeh… - … Journal of Health …, 2021 - Wiley Online Library
Background Registries in various clinical domains have been established in the last
decades. The specific genetic structure of twins has enabled researchers to find answers to …
decades. The specific genetic structure of twins has enabled researchers to find answers to …
[PDF][PDF] Designing a European gambling self-exclusion registry
T Gustafsson - Tallinn University of Technology, 2021 - digikogu.taltech.ee
Abstract The Gambling Self-Exclusion Registries are one of the e-Services offered from the
state level where an individual can ban himself/herself from any land-based or online-based …
state level where an individual can ban himself/herself from any land-based or online-based …
Design and Development of an Open-Source Clinical Trial Registry (CTR) Template Aligned with Who International Standards
Objective: The objective of this study was to develop an open-source Clinical Trial Registry
(CTR) Template which can help in development of registries, aligned to the WHO …
(CTR) Template which can help in development of registries, aligned to the WHO …
Nephrology Worldwide: A Perspective from the International Society of Nephrology
T Chen, R Claure-Del Granado, K Hendricks… - Nephrology …, 2021 - Springer
There has been a marked rise in the social-economic burden of chronic kidney disease and
acute kidney injury over the past few decades. This chapter provides an overview of global …
acute kidney injury over the past few decades. This chapter provides an overview of global …