Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies

J Roberti, A Cummings, M Myall, J Harvey, K Lippiett… - BMJ open, 2018 - bmjopen.bmj.com
Introduction Chronic kidney disease (CKD) requires patients and caregivers to invest in self-
care and self-management of their disease. We aimed to describe the work for adult patients …

Serious illness conversations in ESRD

EI Mandel, RE Bernacki, SD Block - Clinical Journal of the …, 2017 - journals.lww.com
Dialysis-dependent ESRD is a serious illness with high disease burden, morbidity, and
mortality. Mortality in the first year on dialysis for individuals over age 75 years old …

[HTML][HTML] Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study

H Miller, J Tan, JM Clayton, A Meller, O Hermiz… - BMC Palliative Care, 2019 - Springer
Background Advance care planning (ACP) can offer benefits to patients and their families,
especially when delivered in outpatient settings, but uptake remains low. Common barriers …

Advance care planning in older adults with CKD: patient, care partner, and clinician perspectives

K Ladin, I Neckermann, N D'Arcangelo… - Journal of the …, 2021 - journals.lww.com
Background Older patients with advanced CKD are at high risk for serious complications
and death, yet few discuss advance care planning (ACP) with their kidney clinicians …

[HTML][HTML] Treatment decisions for older adults with advanced chronic kidney disease

SJ Rosansky, J Schell, J Shega, J Scherer, L Jacobs… - BMC nephrology, 2017 - Springer
Dialysis initiation rates among older adults, aged 75 years or greater, are increasing at a
faster rate than for younger age groups. Older adults with advanced CKD (eGFR< 30 …

“End-of-life care? I'm not going to worry about that yet.” Health literacy gaps and end-of-life planning among elderly dialysis patients

K Ladin, K Buttafarro, E Hahn, S Koch-Weser… - The …, 2018 - academic.oup.com
Purpose Between 2000 and 2012, the incident dialysis population in the United States
increased by nearly 60%, most sharply among adults 75 years and older. End-of-life (EOL) …

[HTML][HTML] Advance care planning with patients who have end-stage kidney disease: a systematic realist review

P O'Halloran, H Noble, K Norwood, P Maxwell… - Journal of pain and …, 2018 - Elsevier
Context Patients with end-stage kidney disease have a high mortality rate and disease
burden. Despite this, many do not speak with health care professionals about end-of-life …

Advance care planning with chronically ill patients: A relational autonomy approach

T Killackey, E Peter, J Maciver… - Nursing ethics, 2020 - journals.sagepub.com
Advance care planning is a process that encourages people to identify their values, to reflect
upon the meanings and consequences of serious illness, to define goals and preferences …

Challenges to shared decision making about treatment of advanced CKD: a qualitative study of patients and clinicians

TR House, A Wightman, AR Rosenberg, G Sayre… - American Journal of …, 2022 - Elsevier
Rationale & Objective Greater understanding of the challenges to shared decision making
about treatment of advanced chronic kidney disease (CKD) is needed to support …

[HTML][HTML] Characterizing approaches to dialysis decision making with older adults: a qualitative study of nephrologists

K Ladin, R Pandya, RD Perrone… - Clinical Journal of the …, 2018 - journals.lww.com
Results Among 35 nephrologists from 18 practices, 20% were women, 66% had at least 10
years of nephrology experience, and 80% were from academic medical centers. Four …