Biobanking in health care: evolution and future directions
L Coppola, A Cianflone, AM Grimaldi… - Journal of translational …, 2019 - Springer
Background The aim of the present review is to discuss how the promising field of
biobanking can support health care research strategies. As the concept has evolved over …
biobanking can support health care research strategies. As the concept has evolved over …
Future-proofing biobanks' governance
Good biobank governance implies—at a minimum—transparency and accountability and
the implementation of oversight mechanisms. While the biobanking community is in general …
the implementation of oversight mechanisms. While the biobanking community is in general …
Secondary research use of personal medical data: attitudes from patient and population surveys in The Netherlands and Germany
G Richter, C Borzikowsky, W Lesch… - European Journal of …, 2021 - nature.com
Making routine clinical-care-data available for medical research requires adequate consent
to legitimize use and exchange. While, public interest in supporting medical research is …
to legitimize use and exchange. While, public interest in supporting medical research is …
[HTML][HTML] Sharing data for future research'engaging participants' views about data governance beyond the original project: a DIRECT Study
N Shah, V Coathup, H Teare, I Forgie, GN Giordano… - Genetics in …, 2019 - Elsevier
Purpose Biomedical data governance strategies should ensure that data are collected,
stored, and used ethically and lawfully. However, research participants' preferences for how …
stored, and used ethically and lawfully. However, research participants' preferences for how …
Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies
Background The promises of improved health care and health research through data-
intensive applications rely on a growing amount of health data. At the core of large-scale …
intensive applications rely on a growing amount of health data. At the core of large-scale …
Stakeholder engagement to ensure the sustainability of biobanks: a survey of potential users of biobank services
C Klingler, M von Jagwitz-Biegnitz, R Baber… - European Journal of …, 2022 - nature.com
Biobanks are important infrastructures facilitating biomedical research. After a decade of
rolling out such infrastructures, a shift in attention to the sustainability of biobanks could be …
rolling out such infrastructures, a shift in attention to the sustainability of biobanks could be …
Raising to the challenge: building a federated biobank to accelerate translational research—The University Biobank Limburg
L Linsen, K Vanhees, E Vanoppen, K Ulenaers… - Frontiers in …, 2019 - frontiersin.org
Irreproducibility of research results is one of the major contributing factors to the failure of
translating basic research results into tangible bedside progress. To address this, the …
translating basic research results into tangible bedside progress. To address this, the …
Current practices for access, compensation, and prioritization in biobanks. Results from an interview study
Human biological materials and related data stored in biobanks are valuable resources for
biomedical research. Transparent, effective, and efficient governance structures and …
biomedical research. Transparent, effective, and efficient governance structures and …
Practice evaluation of biobank ethics and governance: current needs and future perspectives
Background Biobank research faces many ethical challenges. Ethics research aims to
develop standards for governance to meet these challenges by elaborating overarching …
develop standards for governance to meet these challenges by elaborating overarching …
Ethical publication of research on genetics and genomics of biological material: guidelines and recommendations
Abstract Forensic Science International: Genetics and Forensic Science International:
Reports communicate research on a variety of biological materials using genetics and …
Reports communicate research on a variety of biological materials using genetics and …