A ledger of me: personalizing healthcare using blockchain technology

G Leeming, J Cunningham, J Ainsworth - Frontiers in medicine, 2019 - frontiersin.org
Personal Health Records (PHRs) have the potential to give patients fine-grained,
personalized and secure access to their own medical data and to enable self-management …

“Giving something back”: a systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of …

J Stockdale, J Cassell, E Ford - Wellcome open research, 2019 - pmc.ncbi.nlm.nih.gov
Background: Use of patients' medical data for secondary purposes such as health research,
audit, and service planning is well established in the UK. However, the governance …

Qualitative research: Ethical considerations

AM Pietilä, SM Nurmi, A Halkoaho… - The application of content …, 2020 - Springer
Ethical aspects include perspectives of subject protection and conducting research based
on ethical standards. This chapter aims to highlight the ethical aspects of qualitative …

[HTML][HTML] Patient perspectives on sharing anonymized personal health data using a digital system for dynamic consent and research feedback: a qualitative study

K Spencer, C Sanders, EA Whitley, D Lund… - Journal of medical …, 2016 - jmir.org
Background: Electronic health records are widely acknowledged to provide an important
opportunity to anonymize patient-level health care data and collate across populations to …

Benefits, challenges, and contributors to success for national eHealth systems implementation: a scoping review

J Scheibner, J Sleigh, M Ienca… - Journal of the American …, 2021 - academic.oup.com
Objective Our scoping review aims to assess what legal, ethical, and socio-technical factors
contribute to or inhibit the success of national eHealth system implementations. In addition …

[HTML][HTML] Patient perspectives and preferences for consent in the digital health context: State-of-the-art literature review

I Kassam, D Ilkina, J Kemp, H Roble… - Journal of medical …, 2023 - jmir.org
Background The increasing integration of digital health tools into care may result in a greater
flow of personal health information (PHI) between patients and providers. Although privacy …

Enabling patient control of personal electronic health records through distributed ledger technology

J Cunningham, J Ainsworth - MEDINFO 2017: Precision …, 2017 - ebooks.iospress.nl
The rise of distributed ledger technology, initiated and exemplified by the Bitcoin blockchain,
is having an increasing impact on information technology environments in which there is an …

Factors affecting willingness to share electronic health data among California consumers

KK Kim, P Sankar, MD Wilson, SC Haynes - BMC medical ethics, 2017 - Springer
Background Robust technology infrastructure is needed to enable learning health care
systems to improve quality, access, and cost. Such infrastructure relies on the trust and …

[HTML][HTML] A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good

LL Skovgaard, S Wadmann, K Hoeyer - Health policy, 2019 - Elsevier
Health data are used for still more purposes, and policies are enacted to facilitate data reuse
within the European Union. This literature synthesis explores attitudes among people living …

“To protect my health or to protect my health privacy?” A mixed‐methods investigation of the privacy paradox

G Fox - Journal of the Association for Information Science and …, 2020 - Wiley Online Library
This paper examines the role of privacy in the health context by investigating the influence of
privacy concerns and perceived benefits on individuals' acceptance of health technologies …