A ledger of me: personalizing healthcare using blockchain technology
Personal Health Records (PHRs) have the potential to give patients fine-grained,
personalized and secure access to their own medical data and to enable self-management …
personalized and secure access to their own medical data and to enable self-management …
“Giving something back”: a systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of …
Background: Use of patients' medical data for secondary purposes such as health research,
audit, and service planning is well established in the UK. However, the governance …
audit, and service planning is well established in the UK. However, the governance …
Qualitative research: Ethical considerations
AM Pietilä, SM Nurmi, A Halkoaho… - The application of content …, 2020 - Springer
Ethical aspects include perspectives of subject protection and conducting research based
on ethical standards. This chapter aims to highlight the ethical aspects of qualitative …
on ethical standards. This chapter aims to highlight the ethical aspects of qualitative …
[HTML][HTML] Patient perspectives on sharing anonymized personal health data using a digital system for dynamic consent and research feedback: a qualitative study
Background: Electronic health records are widely acknowledged to provide an important
opportunity to anonymize patient-level health care data and collate across populations to …
opportunity to anonymize patient-level health care data and collate across populations to …
Benefits, challenges, and contributors to success for national eHealth systems implementation: a scoping review
Objective Our scoping review aims to assess what legal, ethical, and socio-technical factors
contribute to or inhibit the success of national eHealth system implementations. In addition …
contribute to or inhibit the success of national eHealth system implementations. In addition …
[HTML][HTML] Patient perspectives and preferences for consent in the digital health context: State-of-the-art literature review
Background The increasing integration of digital health tools into care may result in a greater
flow of personal health information (PHI) between patients and providers. Although privacy …
flow of personal health information (PHI) between patients and providers. Although privacy …
Enabling patient control of personal electronic health records through distributed ledger technology
J Cunningham, J Ainsworth - MEDINFO 2017: Precision …, 2017 - ebooks.iospress.nl
The rise of distributed ledger technology, initiated and exemplified by the Bitcoin blockchain,
is having an increasing impact on information technology environments in which there is an …
is having an increasing impact on information technology environments in which there is an …
Factors affecting willingness to share electronic health data among California consumers
Background Robust technology infrastructure is needed to enable learning health care
systems to improve quality, access, and cost. Such infrastructure relies on the trust and …
systems to improve quality, access, and cost. Such infrastructure relies on the trust and …
[HTML][HTML] A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good
LL Skovgaard, S Wadmann, K Hoeyer - Health policy, 2019 - Elsevier
Health data are used for still more purposes, and policies are enacted to facilitate data reuse
within the European Union. This literature synthesis explores attitudes among people living …
within the European Union. This literature synthesis explores attitudes among people living …
“To protect my health or to protect my health privacy?” A mixed‐methods investigation of the privacy paradox
G Fox - Journal of the Association for Information Science and …, 2020 - Wiley Online Library
This paper examines the role of privacy in the health context by investigating the influence of
privacy concerns and perceived benefits on individuals' acceptance of health technologies …
privacy concerns and perceived benefits on individuals' acceptance of health technologies …