Challenges and opportunities in transitional care process in Behçet's syndrome

F Di Cianni, MV Mastrolia, E Biancalana… - Frontiers in …, 2024 - frontiersin.org
Behçet's syndrome (BS) is a rare chronic multi-systemic inflammatory disorder that usually
involves adults between third and fourth decades of life, while pediatric and juvenile onset …

Transition of patients with metabolic bone disease from paediatric to adult healthcare services: current situation and proposals for improvement

E Casado, C Gómez-Alonso, G Pintos-Morell… - Orphanet Journal of …, 2023 - Springer
Background There are currently no models for the transition of patients with metabolic bone
diseases (MBDs) from paediatric to adult care. The aim of this project was to analyse …

Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience

K Mikola, K Rebane, ED Arnstad, L Berntson… - Pediatric …, 2022 - Springer
Background With juvenile idiopathic arthritis (JIA), there are several protocols and practices
used worldwide for the transition from paediatric to adult care. In this study, we examined the …

Outcomes of transitional care programs on adolescent chronic inflammatory systemic diseases: systematic review and meta-analyses

F García-Rodríguez, K Raygoza-Cortez… - Pediatric …, 2022 - Springer
Background Patients with juvenile chronic inflammatory systemic diseases (jCID) are
vulnerable to many circumstances when transitioning to adult-centered healthcare; this …

Transition practice for primary immunodeficiency diseases in Southeast Asia: a regional survey

CM Chan, AH Abdul Latiff, LM Noh, IH Ismail… - Frontiers in …, 2023 - frontiersin.org
Introduction With increased diagnostic capabilities and treatment modalities in the field of
primary immunodeficiencies (PID), many pediatric patients survive beyond childhood and …

The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment

HE Sönmez, R Koç, ŞG Karadağ… - International journal of …, 2021 - Wiley Online Library
Introduction Transition is a planned process of pediatric patients from child‐centered to adult‐
oriented treatment. Transitional care for patients with chronic diseases is essential. The …

Patterns of healthcare use and medication adherence among youth with systemic lupus erythematosus during transfer from pediatric to adult care

JC Chang, AM Knight, EF Lawson - The Journal of rheumatology, 2021 - jrheum.org
Objective. Youth with systemic lupus erythematosus (SLE) transferring from pediatric to adult
care are at risk for poor outcomes. We describe patterns of rheumatology/nephrology care …

Transition to Adulthood through Coaching and Empowerment in Rheumatology (TRACER): A feasibility study protocol

E Reesor, D Borovsky, J Herrington, P Jarvis, M Clarke… - Plos one, 2024 - journals.plos.org
The transition from pediatric to adult care for patients with chronic disease is a vulnerable
period, with risks of disengagement from care and subsequent complications of …

National priorities for high-quality rheumatology transition care for youth in Canada

C Barnabe, K Chomistek, N Luca… - The Journal of …, 2021 - jrheum.org
Objective. To conduct a needs assessment and environmental scan to support optimal
transition from pediatric to adult rheumatology care in Canada. Methods. This initiative …

Addressing the unmet needs of transitional care in juvenile idiopathic arthritis

N Şahin, HE Sönmez, N Aktay Ayaz, B Sözeri - Rheumatology, 2024 - academic.oup.com
Objectives We aimed to comprehensively analyze the available literature to identify the
unmet requirements in transitional programs tailored specifically for patients diagnosed with …