Challenges and opportunities in transitional care process in Behçet's syndrome
F Di Cianni, MV Mastrolia, E Biancalana… - Frontiers in …, 2024 - frontiersin.org
Behçet's syndrome (BS) is a rare chronic multi-systemic inflammatory disorder that usually
involves adults between third and fourth decades of life, while pediatric and juvenile onset …
involves adults between third and fourth decades of life, while pediatric and juvenile onset …
Transition of patients with metabolic bone disease from paediatric to adult healthcare services: current situation and proposals for improvement
E Casado, C Gómez-Alonso, G Pintos-Morell… - Orphanet Journal of …, 2023 - Springer
Background There are currently no models for the transition of patients with metabolic bone
diseases (MBDs) from paediatric to adult care. The aim of this project was to analyse …
diseases (MBDs) from paediatric to adult care. The aim of this project was to analyse …
Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience
K Mikola, K Rebane, ED Arnstad, L Berntson… - Pediatric …, 2022 - Springer
Background With juvenile idiopathic arthritis (JIA), there are several protocols and practices
used worldwide for the transition from paediatric to adult care. In this study, we examined the …
used worldwide for the transition from paediatric to adult care. In this study, we examined the …
Outcomes of transitional care programs on adolescent chronic inflammatory systemic diseases: systematic review and meta-analyses
F García-Rodríguez, K Raygoza-Cortez… - Pediatric …, 2022 - Springer
Background Patients with juvenile chronic inflammatory systemic diseases (jCID) are
vulnerable to many circumstances when transitioning to adult-centered healthcare; this …
vulnerable to many circumstances when transitioning to adult-centered healthcare; this …
Transition practice for primary immunodeficiency diseases in Southeast Asia: a regional survey
CM Chan, AH Abdul Latiff, LM Noh, IH Ismail… - Frontiers in …, 2023 - frontiersin.org
Introduction With increased diagnostic capabilities and treatment modalities in the field of
primary immunodeficiencies (PID), many pediatric patients survive beyond childhood and …
primary immunodeficiencies (PID), many pediatric patients survive beyond childhood and …
The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment
HE Sönmez, R Koç, ŞG Karadağ… - International journal of …, 2021 - Wiley Online Library
Introduction Transition is a planned process of pediatric patients from child‐centered to adult‐
oriented treatment. Transitional care for patients with chronic diseases is essential. The …
oriented treatment. Transitional care for patients with chronic diseases is essential. The …
Patterns of healthcare use and medication adherence among youth with systemic lupus erythematosus during transfer from pediatric to adult care
JC Chang, AM Knight, EF Lawson - The Journal of rheumatology, 2021 - jrheum.org
Objective. Youth with systemic lupus erythematosus (SLE) transferring from pediatric to adult
care are at risk for poor outcomes. We describe patterns of rheumatology/nephrology care …
care are at risk for poor outcomes. We describe patterns of rheumatology/nephrology care …
Transition to Adulthood through Coaching and Empowerment in Rheumatology (TRACER): A feasibility study protocol
E Reesor, D Borovsky, J Herrington, P Jarvis, M Clarke… - Plos one, 2024 - journals.plos.org
The transition from pediatric to adult care for patients with chronic disease is a vulnerable
period, with risks of disengagement from care and subsequent complications of …
period, with risks of disengagement from care and subsequent complications of …
National priorities for high-quality rheumatology transition care for youth in Canada
C Barnabe, K Chomistek, N Luca… - The Journal of …, 2021 - jrheum.org
Objective. To conduct a needs assessment and environmental scan to support optimal
transition from pediatric to adult rheumatology care in Canada. Methods. This initiative …
transition from pediatric to adult rheumatology care in Canada. Methods. This initiative …
Addressing the unmet needs of transitional care in juvenile idiopathic arthritis
Objectives We aimed to comprehensively analyze the available literature to identify the
unmet requirements in transitional programs tailored specifically for patients diagnosed with …
unmet requirements in transitional programs tailored specifically for patients diagnosed with …