Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic …
Background: Reflexive thematic analysis is widely used in qualitative research published in
Palliative Medicine, and in the broader field of health research. However, this approach is …
Palliative Medicine, and in the broader field of health research. However, this approach is …
Researching minoritised communities in palliative care: An agenda for change
J Koffman, S Bajwah, JM Davies… - Palliative …, 2023 - journals.sagepub.com
Background: Palliative care access, experiences and outcomes of care disadvantage those
from ethnically diverse, Indigenous, First nation and First people communities. Research into …
from ethnically diverse, Indigenous, First nation and First people communities. Research into …
Total uncertainty: a systematic review and thematic synthesis of experiences of uncertainty in older people with advanced multimorbidity, their informal carers and …
Objectives uncertainty pervades the complex illness trajectories experienced by older adults
with multimorbidity. Uncertainty is experienced by older people, their informal carers and …
with multimorbidity. Uncertainty is experienced by older people, their informal carers and …
A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research
S Mitchell, N Turner, K Fryer, J Beng, ME Ogden… - Research involvement …, 2024 - Springer
Background There are marked inequalities in palliative care provision. Research is needed
to understand how such inequalities can be addressed, so that everyone living with …
to understand how such inequalities can be addressed, so that everyone living with …
[HTML][HTML] Barriers and facilitators of meaningful patient participation at the collective level in healthcare organizations: A systematic review
HJ Westerink, T Oirbans, MM Garvelink… - Health Policy, 2023 - Elsevier
Introduction Collective patient participation, such as patient participation in policy making,
has become increasingly important to achieve high-quality care. However, there is little …
has become increasingly important to achieve high-quality care. However, there is little …
Positioning stakeholder perspectives in COPD End-of-Life Care using critical theory and actor-network theory: a Methodological Approach
Background Meaningful engagement with stakeholders in the provision of healthcare and
services is recommended by the World Health Organisation. Culturally specific evaluation …
services is recommended by the World Health Organisation. Culturally specific evaluation …
Unrepresented, unheard and discriminated against: A qualitative exploration of relatives' and professionals' views of palliative care experiences of people of African …
Background: People of African and Caribbean descent experienced disproportionately high
mortality from COVID-19 and have poor access to palliative care. Aim: To explore palliative …
mortality from COVID-19 and have poor access to palliative care. Aim: To explore palliative …
Opportunities and challenges in involving people with lived experience of inclusion health as co-researchers in palliative and end of life research: a rapid review and …
J Crooks, K Flemming, C Shulman… - Research Involvement and …, 2023 - Springer
Background Co-research is a collaborative approach to research, promoting involvement of
individuals with lived experience of a research area as experts by experience. Recently, the …
individuals with lived experience of a research area as experts by experience. Recently, the …
Emotion in public involvement: A conceptual review
K Liabo, L Asare, P Ruthen, J Burton… - Health …, 2024 - Wiley Online Library
Background Experiential knowledge can aid in designing research by highlighting what an
idea looks like from a patient and carer perspective. Experiential knowledge can be …
idea looks like from a patient and carer perspective. Experiential knowledge can be …
Negotiating pace, focus and identities: Patient/public involvement/engagement in a palliative care study
L Forbat, A Macgregor, T Brown… - Sociology of Health …, 2024 - Wiley Online Library
Patient and public involvement and engagement (PPIE) is an increasingly important
component of research conduct to enhance processes and potential for impact, yet is rarely …
component of research conduct to enhance processes and potential for impact, yet is rarely …